BENEFITING: Potocki Lupski Syndrome Outreach Foundation Inc
EVENT DATE: Nov 19, 2016
We are striving to support those with PTLS with resources to promote understanding, support, and especially a quality inclusive education. We have teamed up to fundraise for this cause with the Potocki-Lupski Syndrome Outreach Foundation, a non-profit 501(c)(3) organization dedicated to furthering research while supporting and educating the medical community and families who have loved ones diagnosed with Potocki-Lupski Syndrome (PTLS), a rare genetic disorder first diagnosed in the United States in 1991. Our family is impacted by this syndrome, and the money raised will help educators understand how best to support this special group of children during school-age and beyond. Thank you!