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james vincent's Fundraiser:

Retts Syndrome

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BENEFITING: Rettsyndrome.org

EVENT: 2012 Boston Marathon

EVENT DATE: Apr 16, 2012

james vincent

THE STORY:

The 2012 Boston Marathon will be my 3rd marathan. I am thrilled that this year I am running for the International Retts Syndrome Foundation. My beautiful 4 year old daughter, Mia, was diagnosed with a rare, atypical form of Retts Syndrome 2 years ago. CDKL5, effects about 250 girls worldwide. As a result of her condition, Mia has approximately 40 seizures each day, can not walk, talk or feed herself.

In 2011 I ran for the Perkins School for the Blind.
In 2010 I ran for the Massachusetts eye and ear infirmary.

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Donor Comments

Anonymous

ANONYMOUS

DONATION: $100

5 years ago