Skip to content
rettsyndromeassociat's profile image - click for profile

RETT SYNDROME ASSN OF MASSACHUSETTS' Fundraiser:

Team Rett Boston Marathon 2014

RETT SYNDROME ASSN OF MASSACHUSETTS' Photo

BENEFITING: RETT SYNDROME ASSN OF MASSACHUSETTS

EVENT: Boston Marathon 2014

EVENT DATE: Apr 21, 2014

THE STORY:

Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

$185,579

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Sharon Warren Crawford

    $25

  • The Cataldo Family

     

  • Jen and Ryan

    $50

  • Anonymous

    $25

  • Samina Akbar

    $25

  • Mom & Dad

    $545

  • Ian Richardson

    $100

  • Carol Hubbard

    $150

  • Eric & Ellen Knight

    $25

  • Paul and Magen Elliott

    $50

  • The Salvo "kids" (Kerry, Dan, & Ryan)

    $75

  • Rob and Nicole Reilly

     

  • Talia Judson

    $50

  • Bob Gould

    $50

  • Anonymous

    $25

  • Josh and Julie

     

  • Anonymous

    $50

  • Al & Janine Lappin

    $50

  • The Palmer Family

     

  • Ruth Millward

    $50

  • Jones kids

     

  • Anonymous

    $50

  • Dawn Grose

    $25

  • Kathy & Roland Cyr

    $25

  • Beth Smith

    $25

  • The Cashes

    $300

  • Jennifer and Jon

    $50

  • Craig, Alison, Matthew, Hayden & Sydney

    $50

  • Jackie

    $25

  • The LaFort Family

    $200

  • Jeff and Lisa

    $200

  • The Andersen Family

    $300

  • Brian W.

    $109

  • Leslie Lang

    $100

  • Jeff Pacheco

    $100

  • The Moda's

    $50

  • The Colombe Family

    $100

  • Molly McHugh

     

  • Tracy Boardman & Adam Way

     

  • Brandy Stuart

     

  • Greg Ehret

    $500

  • Anonymous

    $50

  • Janet Lockhart

    $26

  • Kate & Steve Wolseley

    $50

  • Jeff Clark

    $200

  • Jas, Brian and Ella

    $40

  • Mark

    $72

  • Sue Shaw

    $26

  • Gabriella Castner

    $100

  • Barbara Martinez

    $50

  • Emily and Ryan Snyder

    $126

  • The Malony Family

     

  • Kelly Carlson

    $50

  • Eric and Tracy Bertonazzi

    $100

  • Wendy Murray

    $26

  • Carrazco Tax Clients

    $216

  • Parks family

    $100

  • Binny and Ben

    $25

  • Anonymous

    $50

  • Connie and Jeff Rishwain

    $100

  • Katie

    $25

  • Aristizabal Family

    $100

  • Anonymous

     

  • Anonymous

    $1,000

  • Danny & Michele Nee

    $100

  • Maria and Gerry McTernan

    $500

  • Gift Card $$

    $8

  • Anon

    $100

  • John and Linda Sweeney

     

  • William and Lori Kavanagh

     

  • Anonymous

     

  • Keith Dennelly

     

  • Lupita Bermudez

    $100

  • Rob, Bobbi & Mason Mangus

    $50

  • Gail Hopkins

     

  • Robin and Erick Koskinen

     

  • Sharon and James Heasley

     

  • Jim Knowles

    $100

  • Linda and Tony Antetomaso

    $25

  • Brian & Stephanie Germani

    $50

  • Stephen & Katherine Kierstead

    $50

  • Jim Blais

    $50

  • Claire Brinkman

    $35

  • Jacqui M. Nelson

    $100

  • Ana Mares(Melendez)

    $150

  • Dax Groves

    $50

  • Blue Cross Blue Shield MA

    $17

  • Linda and Anthony Russo

    $25

  • Anonymous

    $200

  • Lisa and John Parisi

    $50

  • Gabriela Cellini

    $50

  • Verizon Matching Donation (Martine McDermott)

    $1,413

  • Peter & Jenni McCarthy

    $100

  • Carl & Chris

    $100

  • Jason McDonnell

    $50

  • David Johndrow

    $250

  • David Johndrow

    $350

  • David Johndrow

    $100

  • Abby Friel and Grandmother

    $100

  • bruce bunnell

    $50

  •  
  •  
  •  
The Boston Marathon on Crowdrise John Hancock on Facebook John Hancock on Twitter

The Team: $185,579 TOTAL RAISED SO FAR

Fundraiser Title

Anthony Rochte

Amount Raised

$20,215

Fundraiser Title

Daniel Warner

Amount Raised

$18,209

 

121% Raised of $15,000 Goal

Fundraiser Title

Dominic Giegerich

Amount Raised

$14,363

 

103% Raised of $14,000 Goal

Fundraiser Title

Ryan & Erica Robertson

Amount Raised

$13,120

 

131% Raised of $10,000 Goal

Fundraiser Title

Jenn Seney

Amount Raised

$12,587

 

84% Raised of $15,000 Goal

Fundraiser Title

Dickie Nee

Amount Raised

$11,865

 

237% Raised of $5,000 Goal

Fundraiser Title

Zenaida Jimenez

Amount Raised

$9,283

Fundraiser Title

Krissy Nowell

Amount Raised

$8,889

Donor Comments

bruce bunnell

bruce bunnell

DONATION: $50

3 years ago

Abby Friel and Grandmother

Abby Friel and Grandmother

DONATION: $100

Congratulations to Krissy and all those supporting these very special girls. 3 years ago

David Johndrow

David Johndrow

DONATION: $100

3 years ago

David Johndrow

David Johndrow

DONATION: $350

3 years ago

David Johndrow

David Johndrow

DONATION: $250

It is finished! 3 years ago

Jason McDonnell

Jason McDonnell

DONATION: $50

3 years ago

Carl & Chris

Carl & Chris

DONATION: $100

3 years ago

Peter & Jenni McCarthy

Peter & Jenni McCarthy

DONATION: $100

We love you, Abby! 3 years ago

Verizon Matching Donation (Martine McDermott)

Verizon Matching Donation (Martine McDermott)

DONATION: $1,413

3 years ago

Gabriela Cellini

Gabriela Cellini

DONATION: $50

3 years ago