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Jenny Gillard's Fundraiser:

Team Rett Boston Marathon 2015

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Jenny Gillard

THE STORY:

Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!

I am running for my daughter Samantha Jane. Sammy was diagnosed with Rett syndrome when she was 16 months old. She is now 7 years old and in the first grade at Peirce elementary school in West Newton. Sammy can not walk, talk or purposefully use her hands. But she remains one of the happiest, sweetest seven year olds I know! Her smile and laugh are infectious and can light up a room. I am inspired by her patience and determination every day and this is why I am taking on this challenge of running the Boston Marathon. We run because they can't and together we can CURE RETT!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

$11,941

MONEY RAISED
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  • Team Rett Racers Alumni Fund

    $250

  • Kris Eriksen

     

  • Mandy Zivin & Fam

    $200

  • Christine Gerson

     

  • virtual 5k

    $775

  • Sleeper Family

     

  • Anonymous

    $30

  • Dave, Jen, & Isabella

    $25

  • Don & Susan Waggaman

     

  • Betsy Kyle and Leo Egan

    $50

  • Peter, Yuki & Nate

    $50

  • Anonymous

    $100

  • Seth, Kristine & Sylvie

    $30

  • Kate Stroud

    $200

  • The Koskinen Family

    $100

  • Mary Lou Dunne

     

  • Di and Matty

    $100

  • The McCue Family

    $30

  • Karen Dias

    $25

  • Kelli McSweeny

    $100

  • Centre Pediatric Associates, PC

    $1,000

  • Brett Faulkner

    $20

  • Aunt Anne and Aunt Annita

     

  • The McCarthy Family

    $200

  • Whitney Matthews

     

  • Cristia Isabel Jimenez

    $500

  • Amy McKee & Greg Olson

    $150

  • The Anyaosah Family

    $40

  • The Gilzean Family

    $100

  • Dawn, Rob, Olivia & Aiden

     

  • Carol Lindsay

     

  • Rick & Joanne Charon

    $50

  • Judith and Kirk Coykendall

    $50

  • Lisa & Silas Jeffrey

    $20

  • The Santees

    $50

  • Judy and David Tiberio

    $200

  • Steven and Nancy Stroud

    $200

  • The Amin Family

     

  • Lauren Boccuzzi

     

  • Emily and Max Solar

    $40

  • Anonymous

    $50

  • michael, cookie and patrick mahoney

     

  • Michelle Simon

     

  • Haylei

    $100

  • Don & Heidi Field

     

  • Suzanne Leonard and Alan Billing

    $25

  • Geoff, Sammy, and Kate

     

  • The Bunnell Family

    $500

  • Liz Ross

    $100

  • Anonymous

    $75

  • Erika Gladstone

     

  • Jennifer Hoyt

     

  • Biogen Matching Funds

    $2,200

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119% Raised of $10,000 Goal

The Team: $90,168 TOTAL RAISED SO FAR

Fundraiser Title

John Conley

Amount Raised

$20,675

Fundraiser Title

Jenny Gillard

Amount Raised

$11,941

 

119% Raised of $10,000 Goal

Fundraiser Title

Kevin McCarron

Amount Raised

$10,760

 

143% Raised of $7,500 Goal

Fundraiser Title

lori mitchener

Amount Raised

$10,141

 

101% Raised of $10,000 Goal

Fundraiser Title

Tara O'Connell

Amount Raised

$9,766

 

98% Raised of $10,000 Goal

Fundraiser Title

Ryan Enright

Amount Raised

$9,701

 

114% Raised of $8,500 Goal

Fundraiser Title

Krissy Nowell

Amount Raised

$8,742

Fundraiser Title

grace stults

Amount Raised

$7,900

Donor Comments

Biogen Matching Funds

Biogen Matching Funds

DONATION: $2,200

2 years ago

Jennifer Hoyt

Jennifer Hoyt

2 years ago

Erika Gladstone

Erika Gladstone

Thank you for running for me, Sam, and all our Rett friends. 2 years ago

Anonymous

ANONYMOUS

DONATION: $75

Congratulations Jenny! 2 years ago

Liz Ross

Liz Ross

DONATION: $100

2 years ago

The Bunnell Family

The Bunnell Family

DONATION: $500

Congratulations Jenny ! 2 years ago

Geoff, Sammy, and Kate

Geoff, Sammy, and Kate

Great job! We are so proud of you!!! 2 years ago

Suzanne Leonard and Alan Billing

Suzanne Leonard and Alan Billing

DONATION: $25

2 years ago

Don & Heidi Field

Don & Heidi Field

2 years ago

Haylei

Haylei

DONATION: $100

This is for Sammy. Run like the wind. Thank you xx 2 years ago