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John Conley's Fundraiser:

Team Rett Boston Marathon 2015

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John Conley

THE STORY:

RETT SYNDROME ASSN OF MASSACHUSETTS wrote -

Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

$20,675

MONEY RAISED
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  • Janet, Kelcey & Caleb

    $250

  • The Leones

    $250

  • The Faia Family

    $100

  • John & Mary Barry

    $1,000

  • Mark Smith

    $250

  • The Filtzer Family

    $100

  • Michael and Jane Joyce

    $2,500

  • Matt and Heidi George

    $250

  • Dana and Urshula

    $1,000

  • Team JDL

    $1,100

  • Glynn Family

    $100

  • Chris Mullen

    $100

  • The Cook Family

    $100

  • Britton Derkac

    $100

  • Gil & Melissa Dailey

    $250

  • Vicki Keenan

    $125

  • Philip Boccalatte

    $100

  • Anonymous

     

  • Mr & Mrs Henry Kara

    $2,000

  • Cushman & Wakefield

    $2,500

  • Ryan Enrght

    $250

  • Andrew, Meg, Katie and Maggie Kara

    $250

  • David Connolly

    $100

  • Sarah Lagosh

     

  • The Lashar Family

    $1,000

  • Steve and Jill Purpura

    $1,000

  • Transwestern RBJ

    $5,000

  • Molly Padien-Havens

     

  • Ron and Michele Friedman

    $200

  • Michael Meroski

    $100

  • Bill & Ann Marie Kennedy

    $100

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The Team: $90,168 TOTAL RAISED SO FAR

Fundraiser Title

John Conley

Amount Raised

$20,675

Fundraiser Title

Jenny Gillard

Amount Raised

$11,941

 

119% Raised of $10,000 Goal

Fundraiser Title

Kevin McCarron

Amount Raised

$10,760

 

143% Raised of $7,500 Goal

Fundraiser Title

lori mitchener

Amount Raised

$10,141

 

101% Raised of $10,000 Goal

Fundraiser Title

Tara O'Connell

Amount Raised

$9,766

 

98% Raised of $10,000 Goal

Fundraiser Title

Ryan Enright

Amount Raised

$9,701

 

114% Raised of $8,500 Goal

Fundraiser Title

Krissy Nowell

Amount Raised

$8,742

Fundraiser Title

grace stults

Amount Raised

$7,900

Donor Comments

Bill & Ann Marie Kennedy

Bill & Ann Marie Kennedy

DONATION: $100

2 years ago

Michael Meroski

Michael Meroski

DONATION: $100

2 years ago

Ron and Michele Friedman

Ron and Michele Friedman

DONATION: $200

2 years ago

Molly Padien-Havens

Molly Padien-Havens

2 years ago

Transwestern RBJ

Transwestern RBJ

DONATION: $5,000

2 years ago

Steve and Jill Purpura

Steve and Jill Purpura

DONATION: $1,000

2 years ago

The Lashar Family

The Lashar Family

DONATION: $1,000

2 years ago

Sarah Lagosh

Sarah Lagosh

2 years ago

David Connolly

David Connolly

DONATION: $100

2 years ago

Andrew, Meg, Katie and Maggie Kara

Andrew, Meg, Katie and Maggie Kara

DONATION: $250

Good Luck John!!! Andrew, Meg, Katie and Maggie Kara 2 years ago