BENEFITING: RETT SYNDROME ASSN OF MASSACHUSETTS
ORGANIZER: RETT SYNDROME ASSN OF MASSACHUSETTS
EVENT: 2015 Boston Marathon
EVENT DATE: Apr 20, 2015
I am running the 119th Boston Marathon on April 20th in support of the Rett Syndrome Association of Massachusetts. This will be my third year running with Team Rett. I run to honor my former student, Haylei, and the many others who struggle with Rett Syndrome. Please support me in my cause.
Please remember that all donations are tax deductible. You can make your payment online or mail a check to me @ 7 Frank Street, Wakefield, MA 01880. Please make your check payable to the Rett Syndrome Association of Massachusetts.
Thanks for any help that you can give!
RETT SYNDROME ASSN OF MASSACHUSETTS wrote -
Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!
Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.
Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.
Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!