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Tara O'Connell's Fundraiser:

Team Rett Boston Marathon 2015

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Tara O'Connell

THE STORY:

Hi Friends,

I am excited to team up with Chris Kolendrianos in my training/fundraising for the Boston Marathon on April 20th. We are doing this to help raise funds for Rett Syndrome clinical trials (IGF-1) currently going on in Boston. This marathon is no comparison to what these two beauties do each and every day.

Michelle Lopes (16)  and Sorel Kolendrianos (9) both have Rett Syndrome. 

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Please support us in our efforts closest to our hearts and help us reach our goal of $10,000. No amount is too big or small. Your help is OUR hope!

Sincerely,

Tara O'Connell

RETT SYNDROME ASSN OF MASSACHUSETTS wrote -

Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

$9,766

MONEY RAISED
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  • Barb and Joyce

    $25

  • Me and Mrs Webber

    $100

  • Michelle's Brother - Matthew Lopes

    $100

  • Pop, Nips, and Mark W.

    $70

  • Jami Franco

    $100

  • Gary&Ginny; Wynn

     

  • Gomes School Staff (Story Time)

    $60

  • Allison Brennan (story time)

    $30

  • Robby Thatcher Memorial Fund (story time)

    $100

  • Annie Jellison (story time)

    $20

  • Arlene and Ray Arruda (story time)

    $100

  • Story Time with Santa

    $388

  • Lee and Jose Sousa

    $50

  • Grandma Irene happy birthday

    $50

  • Gail Krass

    $15

  • Jon

    $100

  • Donna Kitchens

    $100

  • Lynn & Mike

    $100

  • mat

     

  • Uncle Danny & Aunt Kathy

    $100

  • Bob & Annette Scanlon

    $50

  • James

    $100

  • KARL STORZ IMAGING

    $1,500

  • wayne j amaral

    $50

  • Christopher & Arnie

    $100

  • KSI Match (Christopher Chamness)

    $100

  • Yiayia & Papou Kolendrianos

    $250

  • Vivian and Mike Pahos

    $200

  • Phil Johnson (Honor of Sorel & Michelle)

    $300

  • (KSI Match) Phil Johnson

    $300

  • Lisa Blake

    $50

  • (KSI Match) Lisa Blake

    $50

  • Tara McConnel

    $50

  • Kelly Carlson in Honor of Sorel & Michelle!

    $75

  • Alexandra & Mike Ramirez

    $150

  • Gregg & Doreen Lacasse

    $50

  • Barry

    $50

  • (KSI Match) Barry Mirror

    $50

  • Anonymous

    $100

  • (KSI Match) Anonymous

    $100

  • Liza Iolli

    $100

  • rock against Rett!

    $2,118

  • Brian Tonnelli

    $50

  • Robby Thatcher Memorial Fund

    $100

  • Do Couto Macedo Family

    $100

  • Mike Deforge

    $60

  • Basil Stamos

    $200

  • Melissa & Justin Scanlon

    $100

  • Jo Tejada

    $50

  • (KSI Match) Jo Tejada

    $50

  • Gail Laferriere

    $50

  • Patrick and Cheryl Jochim

    $50

  • James Laferriere

    $50

  • The Donovan's

    $75

  • Lee & Cindy Holoien

    $100

  • (KSI Match) Lee & Cindy Holoien

    $100

  • Jenni, Jon, Griffin and Chloe Miller

    $50

  • Chad & Tanya Steenerson

    $250

  • Shannon Andersen

    $10

  • KSI match

    $250

  • Anonymous

    $500

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98% Raised of $10,000 Goal

The Team: $90,168 TOTAL RAISED SO FAR

Fundraiser Title

John Conley

Amount Raised

$20,675

Fundraiser Title

Jenny Gillard

Amount Raised

$11,941

 

119% Raised of $10,000 Goal

Fundraiser Title

Kevin McCarron

Amount Raised

$10,760

 

143% Raised of $7,500 Goal

Fundraiser Title

lori mitchener

Amount Raised

$10,141

 

101% Raised of $10,000 Goal

Fundraiser Title

Tara O'Connell

Amount Raised

$9,766

 

98% Raised of $10,000 Goal

Fundraiser Title

Ryan Enright

Amount Raised

$9,701

 

114% Raised of $8,500 Goal

Fundraiser Title

Krissy Nowell

Amount Raised

$8,742

Fundraiser Title

grace stults

Amount Raised

$7,900

Donor Comments

Anonymous

ANONYMOUS

DONATION: $500

For our darling Rett Angels, we Honor their dedicated & loving Moms & Dads. 3 years ago

KSI match

KSI match

DONATION: $250

3 years ago

Shannon Andersen

Shannon Andersen

DONATION: $10

3 years ago

Chad & Tanya Steenerson

Chad & Tanya Steenerson

DONATION: $250

3 years ago

Jenni, Jon, Griffin and Chloe Miller

Jenni, Jon, Griffin and Chloe Miller

DONATION: $50

3 years ago

(KSI Match) Lee & Cindy Holoien

(KSI Match) Lee & Cindy Holoien

DONATION: $100

3 years ago

Lee & Cindy Holoien

Lee & Cindy Holoien

DONATION: $100

3 years ago

The Donovan's

The Donovan's

DONATION: $75

In support of Michelle Lopes , Sorel and all the young girls fighting Retts. 3 years ago

James Laferriere

James Laferriere

DONATION: $50

3 years ago

Patrick and Cheryl Jochim

Patrick and Cheryl Jochim

DONATION: $50

3 years ago