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Gordon Christie's Fundraiser:

Rett Syndrome Association of Massachusetts Boston 2017

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Gordon Christie

THE STORY:

Most of you know I have Rett Syndrome. I have difficulty communicating with the outside world and let all y'all know about the things that are important to me. My Dad is running the 2017 Boston Marathon in April to raise money for Rett Syndrome trials going on there now at Boston Childrens Hospital and MIT. This is one of the importanter things to me.

It is so important that we keep the research moving and at a fast pace. Having Rett is not fun i have seizures all the freaking time. I get fed this sugary milk through my belly and there i'm not even allowed to eat bacon. Really as if things were not bad enough.

I will be 17 in a few months which means it won't be long before i'll be flying down boylston street as soon as i'm old enough to participate either with a racing chair or without one....

Sincerely,

Catherine Cecilia Christie

 

RETT SYNDROME ASSN OF MASSACHUSETTS wrote -

Team Rett FundRacers will be raising money for research in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!  For more information about RSAM, please visit our website at www.rettsyndromemass.org

DONATE

To This Fundraiser

$460

MONEY RAISED
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  • Kim Erin OConnor

    $50

  • Carrie Calkins

    $50

  • Mike and Rebecca Masse

    $50

  • Belen and Marty

    $50

  • Fresquez family

    $100

  • Sonia Dhodapkar

     

  • Marcia Noyes

     

  • Art Fresquez - S&P Global Donation Match

    $100

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92% Raised of $500 Goal

Fundraise for this Campaign

The Team: $87,637 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Tracy Freeman

Amount Raised

$14,371

 

144% Raised of $10,000 Goal

Fundraiser Title

Jenn Seney

Amount Raised

$12,577

 

63% Raised of $20,000 Goal

Fundraiser Title

Andrés Cosano Molleja

Amount Raised

$10,537

 

105% Raised of $10,000 Goal

Fundraiser Title

Mark Lazzara

Amount Raised

$10,374

 

104% Raised of $10,000 Goal

Fundraiser Title

Kate Riley

Amount Raised

$9,761

 

115% Raised of $8,500 Goal

Fundraiser Title

Beth Herrmann

Amount Raised

$8,540

 

100% Raised of $8,500 Goal

Fundraiser Title

Andrew Caligiuri

Amount Raised

$8,520

 

100% Raised of $8,500 Goal

Fundraiser Title

Krissy Nowell

Amount Raised

$8,249

 

82% Raised of $10,000 Goal

Donor Comments

Art Fresquez - S&P Global Donation Match

Art Fresquez - S&P Global Donation Match

DONATION: $100

2 months ago

Marcia  Noyes

Marcia Noyes

3 months ago

Sonia Dhodapkar

Sonia Dhodapkar

Good luck in Boston Gordon! & many smiles to your daughter! 3 months ago

Fresquez family

Fresquez family

DONATION: $100

3 months ago

Belen and Marty

Belen and Marty

DONATION: $50

Go get it Gordon!!! 3 months ago

Mike and Rebecca Masse

Mike and Rebecca Masse

DONATION: $50

Wishing you a memorable, wonderful Boston Marathon event in April! 4 months ago

Carrie Calkins

Carrie Calkins

DONATION: $50

5 months ago

Kim Erin OConnor

Kim Erin OConnor

DONATION: $50

5 months ago