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THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC's Fundraiser:

Team Run for Our Sons NYC Marathon 2010

THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC's Photo
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC's Photo
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC's Photo
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC's Photo

THE STORY:

Run For Our Sons provides runners at all levels with entry to racing events across the country in exchange for their fundraising efforts in the fight against Duchenne muscular dystrophy. Since 2005, Run For Our Sons has raised over a million dollars from these events.

Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births (about 20,000 new cases each year). Because the Duchenne gene is found on the X-chromosome, it primarily affects boys; however, it occurs across all races and cultures.

Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin. Because dystrophin is absent, the muscle cells are easily damaged. The progressive muscle weakness leads to serious medical problems, particularly issues relating to the heart and lungs. Young men with Duchenne typically live into their late twenties.

Becker muscular dystrophy, which is less severe than Duchenne, occurs when dystrophin is manufactured, but not in the normal form or amount. Because of this disparity in the severity of the different forms of these disorders, we will refer primarily to Duchenne throughout this site.

Duchenne can be passed from parent to child, but approximately 35% of cases occur because of a random spontaneous mutation. In other words, it can affect anyone. Although there are medical treatments that may help slow its progression, there is currently no cure for Duchenne.

The Team: $50 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Marie P

Amount Raised

$0

Donor Comments

Manuel

Manuel

DONATION: $50

6 years ago