I am so excited to run the NYC Marathon and have the opportunity to raise awareness and funds for a great cause. My son Michael, who is now 20, was diagnosed with Crohn's disease at age 10. He stopped growing at the age of 7, could barely eat, and had very little energy - not typical for most young boys.
Michael endured many doctors appointments, medical procedures, and was repeatedly misdiagnosed. The disease does not typically affect young children so the pediatrians discarded his symptoms to be the result of the latest stomach virus. His first GI doctor at age 9 treated him for anemia and diagnosed him with Irritable Bowel Syndrom (IBS) as result of too much stress, although Michael claimed he did not feel stressed, just tired and sick to his stomach. We continued to visit specialist after specialist until we finally found a GI doctor who did a colonscopy and diagnosed him with Crohn's disease. However by this time the stricture in his intestines grew to the point where food wouldn't pass through it, and resulted in numerous emergency room visits. He had a resection, surgery where 6 inches of intestines were removed and the result was very good, he could finally eat and grew 6 inches in 1 year, although his growth was negatively impacted.
I'm hopeful that awareness and research will prevent other young children to be misdiagnosed and suffer without treatment. I truly appreciate any donations as every dollar will contribute to the cause!
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