Right Jugular Foramen Tumor
Organized by: Kristy Cheek
On November 16th, 2015, I was diagnosed with a rare brain tumor at the Right Jugular Foramen. I had not even heard of that location before. It's not the tumor that make my case rare, it is the location. I live in South Carolina. There are only three surgeons on the Eastern side of the Nation who has experience with surgically removing and then Radiating a tumor at this location. They are located at Duke, Mt Sinai in NYC, and at Dana-Farber in Boston. My fiancé died in May of last year. I live by myself, but have spent more time at my mother's because I need someone to help me on most days. I have had to face the reality of having to travel away from home to receive treatment, but at this point I will have to go alone with no support from anyone actually being there. My life now depends on treatment at one of these centers. The closest to me is Duke. This is still not near enough to travel daily for treatment. I would need to live in a temporary house for Cancer patients. The problem that exists is that a caretaker must accompany you. The need would be for the six weeks of daily radiation. Neither my mom or sister can stop there lives to accompany me for six weeks. Of course, they will be present during any and all surgical procedures. I could not have my mother with me that long anyway. My diagnosis and its rarity has gone way over her level of comprehension. She becomes frustrated which in turn places great anxiety on me. My sister has four children in school. She is not a possible candidate to join me. So, my only choice will be to hire someone. This actually should have already been started. If I had the ability of having someone come in for two hours a day to check on me, help me with handling bills, help with dressing, and with making one meal a day for me, I could go back to my apartment. For summation, I am searching for the finances to have an aid come in for two hours a day, drive me to my appointments at Duke, and accompany me for the six weeks of Radiation. It was by the Grace of God that I accidentally found this website. Then again, I do not believe in coincidences. I do hope people will read this post and see how I need some assistance. Thank you so much for your time. I'm using a guideline of six months from beginning in home care, Radiation. and recovery from Radiation. Side effects from Radiation of the brain typically begin after the treatment. I anticipate the financial burden of paying for someone and their expenses to be approximately $12,000 for a six month commitment. I am hoping for help with half of the amount. Every dollar will count and matter. I cannot thank you enough for taking the time to read about my need. God Bless.