Riley's series of unfortunate events
Team Member: Jackie Graham
Rhiannon Wolpe wrote -
Earlier this year Riley was hospitalized for two weeks. She was in a very bad place, with a staph infection in her blood stream that was infecting multiple organs. After a week of tests including MRI,X-ray, bone scan and echocardiogram, iv antibiotics and round the clock Tylenol and Motrin, the doctors had no answers and she still wasn't improving. She became septic and we spent the next few days in the icu. We were watching her vitals rapidly decline and weren't given a very positive prognosis. After a few days in the icu, they finally got her on the right combination if antibiotics and she started to improve. We were moved back to a regular room and she had a PICC line placed. We were discharged after two weeks with her PICC line in place and a home health nurse scheduled to check vitals and draw blood once a week for the next 4 weeks. Subsequent to her staph infection in her bloodstream, she developed osteomyelitis in her left tibia, myofasciatis in her hips and buttocks and nodules of bacteria attached to her lungs. She recovered over time and began play therapy once a week, to help recover from the mental stress. A week ago, 6 months after her original illness, she started complaining of leg pain and spiked a low grade fever. We brought her back to the hospital and she was admitted because her leg pain was correlating with her previous bone infection and her blood work was slightly abnormal. She has been here for a week and had X-rays, MRIs, echo, a bone biopsy and a cast put on. The doctors can't figure out what's causing her current symptoms because there not finding an active infection anywhere. She's been put on oral antibiotics and we should be going home soon. When she was hospitalized earlier this year, I spent every day by her side and out of work, with no pay. I've spent a lot of money driving to and from the hospital, feeding myself while here and buying things at stores close by to reduce the time away from Riley, to go home to get clothes and things for personal hygiene. Aside from Riley's illness affecting our family over the last 7 months, I've been out of work for several weeks for my own illness over the past 6 months with several hospitalizations, several surgeries and a lot of medical bills. Riley is getting better and I'm working on recovering myself, but we both have a lot of stress and I have a lot of bills. We are asking for any help from anyone that feels compelled to contribute. Any money we receive will be used for medical bills, further treatments and daily needs for her and her brother. If we receive more than what we set our goal at, it will go to savings for the kids, to be saved for school or further medical needs if need be.
Riley was recently hospitalized again, for a week due to her chronic osteomyelitis. Her inflammatory markers were elevated, she had X-rays, MRI and a bone marrow scrape/Biopsy. No active infection was found but Infectious disease prescribed antibiotics, just to be safe. Then, on 10/14/14, we took her to her doctors office for a bug bite that had become increasingly tender and her entire thigh was red, it apparently turned into a staph boil. Her inflammatory markers were highly elevated and she was prescribed antibiotics once again. She saw her infectious disease doctor this morning and was instructed to continue her antibiotics for 12 weeks and they obtained blood work, to review her inflammatory markers at this point in time.
Riley's struggle was expected to be a long and tough process and she has been such a brave and amazing trooper through everything. She as always, has not let her recent infections affect her spirits and I will continue to update the fundraising page with her medical status. Please do us a favor and share the link for our fundraiser, every share and every cent donated is a tremendous help to our family.
Thank you so very much!
Rhiannon, Riley and Eli