Rise Up 4 Luisa - #RU4Luisa
Organized by: Luisa Hall Valdez
Round Two of Treatment is Underway!
November 08, 2016
For more than a year, I have been battling a rare disease that is literally making my body waste away. Gastroparesis is a paralyzation of the gut, which means my body barely processes food, poorly absorbs nutrients, and functions at a very weak state. My hair began falling out from nutrient deficiencies earlier this year and I had to make the decision to shave my head the week before my 32nd birthday. Every day is different when you're sick, hurting, and hungry all the time -- but I rise up to the challenge by doing the best I can with each day I get and my loved ones also rise up to help me though the good, bad, and ugly days. When you're sick with Gastroparesis though, there are a lot of ugly days and unfortunately the next phase of my treatment will offer plenty of them, which is why I need your help, why I need you to Rise Up 4 Luisa!!
As most of you may know, I am an Army Veteran but the VA does not cover these medical expenses which means I am responsible out of pocket. I have to undergo a couple of rounds of an aggresssive 10-week IV Chelation treatment: each session will be about $150 (a very generous rate though the support + negotiation of my naturopathic team) and I am looking at about 20+ sessions. I also need additional heavy metals and food allergy testing which will be about $300 each. There are other things on the horizon that I would greatly appreciate support for (like dental work to remove the metals in my teeth) and this fundraiser does not include the existing monthly costs of managing this disease (like nutritional support, vitamins, supplements, pain management, comfort care, etc.) which is why my goal is only $3600.
How can you Rise Up 4 Luisa?
Here are a few ways your help would be appreciated:
- DONATE -- make a donation here on CrowdRise, plan a fundraiser of your own in my honor, or connect with me at firstname.lastname@example.org if you'd like another donation source (pay pal, fb, square, google pay, etc).
- ADVOCATE -- spread my story far and wide! Gastoparesis needs more awareness and so do the people suffering and wasting away from this disease! Let people know why you donated and invite them to Rise Up! I'd also appreciate you using the hashtag #RU4Luisa and/or sharing this fundraising page where you feel appropriate.
- CELEBRATE -- take a few moments to celebrate you, wherever you're at in your journey, because I know I am grateful for your support (and that you're still reading this...) If you have a few more moments of lovingkindness to spare after taking care of you, I'd totally appreciate you sending them my way! (I also appreciate selfies, food pics, sweaty walks, and hugs!)
- SAVE THE DATE -- for Sunday, September 11th. It's my diagnosis anniversary and my first recovery week after my initial 10-week treatment. Details will come late in August.
There are no words to describe how humbling this journey has been; thank you for being part of it.