Put me in Coach
Our precious baby RJ was born Friday September 18th, 2015. He passed, 30 hours later.
In January of 2015 I found out I was pregnant. This was a complete shock. Totally unplanned. Nonetheless, my excitmenet grew each day with the thought of bringing another chiled into the world, even in my early 40's.
Brian and I went for the level 2 ultra sound on Tuesday, April 28th. The results were not so positive. The doctor spotted several markers for Trisomy 18 (Edwards syndrome). It is a very rare condition. You can learn more at www.trisomy18.org. This diagnosis was confirmed through the results of an amnio.
Although hopeful, we were not expecting to bring our newborn son home. We wanted our baby's journey in this world to be what it was meant to be, even if his time on earth was short. We were fortunate to have received the support and resources needed to plan for the birth of our son and to have quality time with him at delivery.
On Septemeber 20th, 2015 RJ grew his wings and joined his Grandma Mary Ann and Grandpa Bob in heaven. We were so very furtunate to have had time with RJ. He fought so very hard to be with us. In the end his tiny little body was tired and he could no longer fight. He will forever be our strong, brave, and beautiful little boy. He taught us to have hope. I pray god will continue to guide us through this pain and bring us joy in remembering RJ.
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