BENEFITING: Epilepsy Foundation of Metropolitan New York
EVENT DATE: Sep 21, 2014
My name is Robin and I have had epilepsy for 7 years, since I was 14. I found out about EFMNY a few months ago and when I read that there are walks for epilepsy, I was eager to join and started my team, Robin’s Minions. Although it sounds silly, I came up with the name because I love the movie Despicable Me (and Disney) and since the color of epilepsy awareness is purple, I decided that having the purple minions from the second movie would be a cute idea to add on my poster.
The first difficulty I had after my first seizure was living in fear of my next seizure and if it was actually going to happen. I still have that fear today. After my second one shortly after the first, my doctor put me on medication twice a day, but it was hard for me to remember to take them and I rarely did. I had many seizures because of this and after I had one at a hair salon, I decided to switch doctors and try a different medication. I was seizure free for about 2 and a half years, so my doctor decided it was time to wean me off of the medication slowly and less than a month after I stopped taking it I had a seizure minutes after leaving the subway. I don’t enjoy the idea of possibly depending on medication for the rest of my life but after that scare, I’d rather stay safe. That incident happened almost a year ago and I have been seizure free since then.
Another problem I have faced is the issue of driving. I’ve gotten my permit revoked twice because of missing the annual medical form deadline and still feel lousy because I can’t drive. As most of you know, you cannot drive until 6 months after a seizure, and because of this I couldn't take driver's ed in high school. Although I face hardships everyday, I know that there are those that have it worse than I do. My family and I are walking not only for me, but for those who have trouble finding the right treatment. We want to spread awareness that epilepsy is a tough disorder for most to overcome since there really isn't a cure, and any kind of donation would be a great help. Thanks for reading my story!