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Bryan Robinson's Fundraiser:

Run for Multiple Systems Atrophy

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Bryan Robinson via Crowdrise
September 25, 2012

Just because I hit my goal doesn't mean I'm done. Lets keep it rolling!  See more

BENEFITING: NATIONAL ATAXIA FOUNDATION INC

EVENT: Welcome to Long Beach!

EVENT DATE: Oct 07, 2012

Bryan Robinson

THE STORY:

My wife never got to meet my mom, at least not the true her.  By the time I met my wife, my mom was in the final year and a half of her life and by that time, she was bound to a wheelchair lovingly called "the tank".  She had lost much of her ability to communicate by this time so her outgoing personality was trapped within her.

My son and daughter will never get to meet their grandmother.  She passed away in February of 2010, a month before my son (her first grandchild) was born.  More than anything, she was looking forward to "baby sitting" and even though we all knew she couldn't really do it, we indulged her in this.  It still breaks my heart that she missed such a big event in both my life and hers by a month.  I'm just glad that I was able to spend the last couple days of her life with her.

In her early 50s my mom was diagnosed with with a form of sporadic ataxia known as multiple systems atrophy. - cerebella type (MSA-C) and weeks before her 58th birthday, she passed.  MSA is associated with the degeneration of nerve cells in specific areas of the brain and is similar to Parkinson's but with much shorter lifespan for the patient by the time of diagnosis.  This cell degeneration causes problems with movement, balance and other autonomic functions of the body such as blood-pressure regulation. By the end, it was dificult for my mom to just continue to breath.  The cause of MSA is unknown and no specific risk factors have been identified.  There is no remission from the disease and the average lifespan after the onset of symptoms is 7.9 years.  Almost 80% of patients are disabled within 5 years and only 20% survive past 12 years.

She loved to travel, camp and hike, and go to Fomula 1 events.  Shw was always the life of the party, a true social butterfly and always looked forward to watching her USC Trojan football every year.

I am raising money for the National Ataxia Foundation (the general disorder of my mom's disease).  Please donate if you can even if it is just $10 that will never be missed from your bank account.  It will mean the world to someone else.

 

DONATE

To This Fundraiser

$1,015

MONEY RAISED
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  • stephanie euzebio

     

  • Bryan Robinson

    $20

  • Jaclynn Robinson

    $20

  • Kyle Acree

    $50

  • @ADropOfCrimson

    $10

  • Deborah & Michael Webber

    $100

  • Michael Robinson

    $100

  • Kathe & Richard

    $50

  • Rick and Marilyn Chew

    $100

  • Cindy & Cesar

    $30

  • Terry & Linda Galloway

    $50

  • Shannon Torres

    $20

  • Sawyer Robinson

    $25

  • Sara & Richard

    $100

  • Eric Webb

    $20

  • Beth Henning

    $50

  • Denise mitchell

    $25

  • Lentz family

    $200

  • Dan Bachmann

    $20

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102% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $1,015 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Bryan Robinson

Amount Raised

$815

 

82% Raised of $1,000 Goal

Fundraiser Title

Deborah & Michael Webber

Amount Raised

$100

Fundraiser Title

Michael Robinson

Amount Raised

$100

Fundraiser Title

Linda Galloway

Amount Raised

$0

Donor Comments

Dan Bachmann

Dan Bachmann

DONATION: $20

5 years ago

Lentz family

Lentz family

DONATION: $200

5 years ago

Denise mitchell

Denise mitchell

DONATION: $25

5 years ago

Beth Henning

Beth Henning

DONATION: $50

Bryan, your tribute is beautiful 5 years ago

Eric Webb

Eric Webb

DONATION: $20

5 years ago

Sara & Richard

Sara & Richard

DONATION: $100

Well done Bryan, this is a great tribute. Hope to see you soon xx 5 years ago

Sawyer Robinson

Sawyer Robinson

DONATION: $25

Good luck Daddy! Love you! 5 years ago

Shannon Torres

Shannon Torres

DONATION: $20

5 years ago

Terry & Linda Galloway

Terry & Linda Galloway

DONATION: $50

Sue was such an extraordinary person. We had such wonderful times and miss her so much! Terry & Linda Galloway 5 years ago

Cindy & Cesar

Cindy & Cesar

DONATION: $30

5 years ago