My son Tyler has a rare disorder called Eosinophilic Esophagitis or EoE. Learn more about it here.
His esophagus. is eroding due to an allergic reaction to something conventional testing cannot determine. This causes terrrible stomach pain, low weight (considered "failure to thrive), and can eventually lead to an esophagus so narrow he will have a hard time swallowing even a blueberry without swallowing it.
He recently moved to University of Michigan Children's Hospital who speciliazes in this disease and has strarted on steroids tha coat his esophagus to give him some relief and hopefully some weight gain, while we work on determining what is triggering this terrible problem.
We are teaming up with others to help raise both awareness and funding for this devestating disease.
But...it's important to know, Tyler is normal is nearly every way. He just suffers from EE, several food allergies we've been able to determine, asthma, and eczema. He leads a very full life, but is in chronic pain. He plays basketball, video games, and any other thing you would expect a 9 yo to do!
Please help children like him so we can raise awareness and ultimately find a cure.
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