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Rome Ohnui's Fundraiser:

NFXF Let 'Em Know 5K 2014

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Rome's Photo
Rome's Photo
Rome's Photo

BENEFITING: National Fragile X Foundation

EVENT: NFXF LET 'EM KNOW 5K 2014

EVENT DATE: Jul 26, 2014

Rome Ohnui

THE STORY:

What is Fragile X Syndrome?

Fragile X Syndrome is a genetic mutation that causes a range of cognitive, intellectual, and physical disorders, developmental delays, and disabilities across a spectrum.  It manifests similarly with autism (and is in fact the main genetic cause of autism, though it's certainly not the only cause of autism).  However, because it's a spectrum disorder, not all cases of FXS will be identical to another.

The mutated gene rides on the X chromosome, and can be passed on by either parent.  Girls are statistically less affected than boys.  There is no currently known cure.

What is Let ‘Em Know?

Let 'Em Know is National Fragile X Foundation’s Awareness Day event to raise awareness for Fragile X!

It's set up as a virtual run/walk to help raise awareness and funds for Fragile X research and support from anywhere in the world!

It isn’t about how fast or slow you are. It’s about what you can do to raise awareness and “Let ’Em Know!”

What I'm Doing

I'm running the Let 'Em Know event in conjunction with a sanctioned 5K on July 26, 2014.  The race is SterlingFAST, held in conjunction with Sterling Heights' annual SterlingFest city fair.

 

$695

MONEY RAISED
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  • I F Metalworks

    $100

  • Monkey

    $25

  • Rob & Vickie

    $25

  • Rumi Ohnui

    $50

  • Crystalline

    $100

  • Obaachan

    $100

  • Sherwood Brewing Co

    $100

  • Mary Logan

    $25

  • Jason & Julia

    $25

  • Steve Frishcosy

    $100

  • Dennis and Beverly Kelley

    $25

  • Leelee

    $20

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139% Raised of $500 Goal

Fundraise for this Campaign

The Team: $695 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Rome Ohnui

Amount Raised

$525

 

105% Raised of $500 Goal

Fundraiser Title

Rumi Ohnui

Amount Raised

$170

 

113% Raised of $150 Goal

Fundraiser Title

Beth Walker

Amount Raised

$0

Donor Comments

Leelee

Leelee

DONATION: $20

3 years ago

Dennis and Beverly Kelley

Dennis and Beverly Kelley

DONATION: $25

3 years ago

Steve Frishcosy

Steve Frishcosy

DONATION: $100

3 years ago

Jason & Julia

Jason & Julia

DONATION: $25

3 years ago

Mary Logan

Mary Logan

DONATION: $25

3 years ago

Sherwood Brewing Co

Sherwood Brewing Co

DONATION: $100

Rock on Evie and Henry! 3 years ago

Obaachan

Obaachan

DONATION: $100

3 years ago

Crystalline

Crystalline

DONATION: $100

Thank you as a single person wanting to have children for making me aware of this. 3 years ago

Rumi Ohnui

Rumi Ohnui

DONATION: $50

For my darlings, Henry and Evie Ohnui. <3 3 years ago

Rob & Vickie

Rob & Vickie

DONATION: $25

3 years ago