BENEFITING: Rett Syndrome Research Trust
EVENT DATE: Aug 24, 2013
My daughter, Cara, was diagnosed with Rett Syndrome at age 3. Rett Syndrome is the most physically disabling of the autism spectrum disorders and it strikes at random in early childhood, affecting little girls almost exclusively. Many girls live into adulthood, requiring total, 24-hour-a-day care. Currently, there is no treatment beyond supportive, and often ineffective, measures such as feeding tubes, bracing, orthopedic and GI surgeries, and medications for anxiety and seizures. There has been a great deal of research done on Rett Syndrome and in 2007, researches reversed the symptoms of Rett Syndrome in mouse models. This has created hope for the families who live with Rett Syndrome and it is now up to us to turn this hope into reality by creating and supporting more research. To help with this fight, please sponsor me as I compete in the Pittsburgh Tough Mudder on August 24, 2013. The Tough Mudder is a 10-12 mile obstacle course that tests your strength, stamina and mental toughness.