BENEFITING: JAR OF HOPE
EVENT DATE: Nov 01, 2015
I am running the NYC Marathon this year to support JAR OF HOPE. On 6 weeks notice, I plan to help my friend James raise more awareness and more funds to help save his boy from this terminal disease. Please refer to the note from JAR OF HOPE below. Please read mine as well- for many months now, I have watched videos posted by James on Facebook. When Jamesy was first diagnosed, I reached out to James via inbox on Facebook. It was heartbreaking. What is there to say to an old friend who has just received this news about their child? There are no right words. What would I do if I found out that my child had limited time in this world? I'm not sure I'd be able to fight the battles the way James is. But, I am here to help him. Many of his friends are. And we need your help. "Strength in Numbers"
The word "terminal" is unacceptable. No parent should go through this. No sibling or family member. No child deserves this. I can only hope that you will help me surpass a small goal to help Jamsey and the other boys suffering from DMD live stronger and longer lives. Please visit his website www.jarofhope.org
JAR OF HOPE wrote -
Duchenne Muscular Dystrophy is a terminal disease without a stabilizing drug nor a cure. It is a progressive muscle wasting disease that doesn't allow boys to grow with any skeletal muscle tissue.
With your help collectively we can save the boys that are affected with this dreadful disease.