BENEFITING: JAR OF HOPE
EVENT DATE: Nov 01, 2015
Jamesy is 6/yrs old and was diagnosed at 4yrs old with a form of muscular dystrophy called Duchenne. There is no cure. By age 12 James will lose the use of his legs and be wheelchair bound. By 17/18yrs old he will need to be on a breathing tube and statistics say he will not live past his mid twenties. Because Duchenne does not effect millions of people, it does not receive much in financial support towards research & development to help develop stabilizer drugs or find a cure. We are determined to change that and are on the path to doing so.
My friend Jim Raffone(Jamesy's dad) is on a relentless mission to save his son's life but he cannot do it alone. He started Jar Of Hope shortly after his son was diagnosed. Myself along with many others have become very active and dedicated to raising awareness and fundraising to help find a cure. Through some holistic approaches and other non-orthodox methods of finding a way to stabilize this disease and find a cure, we have seen signs of improvement and small hints that there could be light at the end of the tunnel for Jamesy and the other young boys affected by this disease. For example Jamesy spends 2 hours each night, 5 nights a week in a hyperbaric chamber providing pure oxygen to help slow the destruction of muscle tissue in Jamesy's body.
Please help me reach my goal and donate from your heart!!!
JAR OF HOPE wrote -
Jar of Hope's goal is to run 100 miles this calendar year in 2015. We are steadfast in our commitment to raise enough awareness so we can in turn raise money to continue to fund on going studies and eventually find a cure for Duchenne Muscular Dystrophy.
Duchenne Muscular Dystrophy is a terminal disease without a stabilizing drug nor a cure. It is a progressive muscle wasting disease that doesn't allow boys to grow with any skeletal muscle tissue.
With your help collectively we can save the boys that are affected with this dreadful disease.