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Marcia Ferraz-Ferber's Fundraiser:

JAR of Hope-NYC Marathon 2015

Marcia's Photo

BENEFITING: JAR OF HOPE

ORGANIZER: James

EVENT: 2015 TCS New York City Marathon

EVENT DATE: Nov 01, 2015

Marcia Ferraz-Ferber

THE STORY:

Jamesy is 6/yrs old and was diagnosed at 4yrs old with a form of muscular dystrophy called Duchenne.  There is no cure.   By age 12 James will lose the use of his legs and be wheelchair bound.   By 17/18yrs old he will need to be on a breathing tube and statistics say he will not live past his mid twenties.   Because Duchenne does not effect millions of people, it does not receive much in financial support towards research & development to help develop stabilizer drugs or find a cure.  We are determined to change that and are on the path to doing so.

My friend Jim Raffone(Jamesy's dad) is on a relentless mission to save his son's life but he cannot do it alone.   He started Jar Of Hope shortly after his son was diagnosed.  Myself along with many others have become very active and dedicated to raising awareness and fundraising to help find a cure.  Through some holistic approaches and other non-orthodox methods of finding a way to stabilize this disease and find a cure, we have seen signs of improvement and small hints that there could be light at the end of the tunnel for Jamesy and the other young boys affected by this disease.    For example Jamesy spends 2 hours each night, 5 nights a week in a hyperbaric chamber providing pure oxygen to help slow the destruction of muscle tissue in Jamesy's body.

Please help me reach my goal and donate from your heart!!! 

 

JAR OF HOPE wrote -

Jar of Hope's goal is to run 100 miles this calendar year in 2015. We are steadfast in our commitment to raise enough awareness so we can in turn raise money to continue to fund on going studies and eventually find a cure for Duchenne Muscular Dystrophy.

Duchenne Muscular Dystrophy is a terminal disease without a stabilizing drug nor a cure. It is a progressive muscle wasting disease that doesn't allow boys to grow with any skeletal muscle tissue.

With your help collectively we can save the boys that are affected with this dreadful disease.

Thank you,
James's Dad
James Raffone

$4,050

MONEY RAISED
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  • Elizabeth Klein

    $50

  • Anonymous

    $300

  • Samantha and Eric Boyd

    $200

  • Manfre Family

    $100

  • Deborah Georgetti-Piro

    $50

  • fishman

    $100

  • Eric and Jessica Stein

    $25

  • Lori Grande

    $30

  • Liz and Jeff Weber

    $25

  • Yael Sebag

    $25

  • Anonymous

    $100

  • Anonymous

    $50

  • Cheryl

    $50

  • Dana Essner

    $100

  • Jamie and Larry Mark

    $25

  • Artem and Lisa Adamov

    $50

  • The Smuk Family

    $500

  • Robin Domanski

    $25

  • DeAngelis Family

    $50

  • Annette Consola

     

  • Anonymous

    $50

  • Joseph Ippolito

    $100

  • Christine Caunt

    $50

  • Mutaz Abushawish

    $200

  • Rachel & Matt Gelber

    $25

  • Tom and Christina Rafael

    $100

  • Marina Samborsky

    $200

  • Alex and Rita Kuchik

    $100

  • Ankur Marwaha

    $100

  • TLE Movie Night

    $340

  • TLE Movie Night

    $340

  • Lisa

    $10

  • The Schatz Family

    $25

  • Termotto Family

    $50

  • Andrea Cruz

     

  • Jay Roman

    $135

  • Lesi Ordonez-Surman

     

  • Rick & Susie

    $50

  • Tara & Ella Imbrenda

    $50

  • Anonymous

    $40

  • Stella & Dot

    $25

  • Joe Imbrenda

    $50

  • Maggie Ferber

    $25

  • Joseph and Daniela Adao

    $50

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81% Raised of $5,000 Goal

The Team: $49,867 TOTAL RAISED SO FAR

Fundraiser Title

David Ferber

Amount Raised

$6,850

 

69% Raised of $10,000 Goal

Fundraiser Title

James Raffone

Amount Raised

$6,735

 

17% Raised of $40,000 Goal

Fundraiser Title

Joseph Cammarata

Amount Raised

$5,749

Fundraiser Title

George Fellouris

Amount Raised

$4,536

Fundraiser Title

Vincent LaMendola

Amount Raised

$4,478

Fundraiser Title

Larry Moscato

Amount Raised

$4,325

 

108% Raised of $4,000 Goal

Fundraiser Title

Marcia Ferraz-Ferber

Amount Raised

$4,050

 

81% Raised of $5,000 Goal

Fundraiser Title

Stephen Mancino

Amount Raised

$3,690

Donor Comments

Joseph and Daniela Adao

Joseph and Daniela Adao

DONATION: $50

Good Luck! 2 years ago

Maggie Ferber

Maggie Ferber

DONATION: $25

Good luck to everyone on this important mission. 2 years ago

Joe Imbrenda

Joe Imbrenda

DONATION: $50

2 years ago

Stella & Dot

Stella & Dot

DONATION: $25

2 years ago

Anonymous

ANONYMOUS

DONATION: $40

Good Luck !!! 2 years ago

Tara & Ella Imbrenda

Tara & Ella Imbrenda

DONATION: $50

Good luck! 2 years ago

Rick & Susie

Rick & Susie

DONATION: $50

2 years ago

Lesi Ordonez-Surman

Lesi Ordonez-Surman

You got this! 2 years ago

Jay Roman

Jay Roman

DONATION: $135

2 years ago

Andrea Cruz

Andrea Cruz

2 years ago