BENEFITING: CYSTIC FIBROSIS FOUNDATION (inactive)
EVENT DATE: Oct 19, 2014
Hi! My name is Marcella and I have taken on the challenge to run in my very first marathon in Columbus, Ohio on Sunday October 19th, 2014. I'm participating in the 2014 Columbus Marathon as part of Team CF – and this year I am running to cure Cystic Fibrosis! Every mile I run will help raise money to fund vital cystic fibrosis (CF) research, education, and care programs. I have been training hard for this marathon 5-6 days a week every week.
Cystic fibrosis is a devastating genetic disease that affects the lungs and digestive system. More than ten million Americans are symptomless carriers of the defective CF gene. Advances continue to be made in finding a cure, but your help is needed now - more than ever - to help keep up the momentum of this life-saving research. To learn more about CF and the CF Foundation, visit www.cff.org.
Not too long ago it was unheard of for children to live past their toddler years with Cystic Fibrosis and definitely not comfortably. Now thanks to research and care, many people with CF are living into their 30’s, 40’s and beyond yet as of now there is still no cure. The reason why I feel so passionate about Cystic Fibrosis is that I grew up with my cousin, Christi, who was diagnosed with CF not long after she was born.
One of the things I remember about growing up with Christi is that she was constantly coughing, coughing up phlegm and blood, she was always in and out of the Seattle Children’s Hospital in Seattle, WA, and she was frequently sick. Christi was two months older than me and not expected to live past her first birthday. As she grew older, the life expectancy for someone suffering from CF grew. She wasn’t expected to live past 2, then 10, then 16. Christi left behind a husband and two daughters when she passed away on April 14, 2005, less than two weeks before her 29th birthday.
Even though her life and death affected me in different ways my entire life, I cannot imagine the horrors of being her and living every day knowing you will never be healthy and not knowing how much more time you have. Can you even fathom the distress a small child would be under day in and day out? Christi endured so much suffering her entire life. She had to constantly take enzymes with all of her meals, which are these pills that help break down proteins. When she was 12, she had something called a “pic line” inserted into a vein in her arm which pushed up to a large vein near her heart so that the strong antibiotics that she had to take wouldn’t burn out her veins. She had to get this done because she had IV drugs so often and they were too hard on her veins so she needed the pic line so that the drugs would go directly to her large vein that had enough blood flowing through it to dilute the antibiotics as they went into her system.
She was also in physical therapy often, which she hated, it was painful the things they had to do to her back to help the fluid in her lungs move, and it gave her an intense fear of doctors or anyone in a lab coat throughout her life.
I remember driving home from work on April 14th, 2005 and my mom calling me to tell me she had passed. That last visit to the hospital, she had told her mother that she didn’t think she was going to make it this time. That was the first time she had ever said that. Even though death for her was inevitable at a very young age, it still seemed almost surreal to me that she had passed on.
So many improvements have been made to the quality of life for one living with Cystic Fibrosis in the past 9 years since my cousin died. I am very passionate about doing what I can to help those suffering from CF today.
Your generous gift will be used efficiently and effectively - As one of the most efficient and effective organizations of its kind; the Foundation is an accredited charity of the Better Business Bureau’s Wise Giving Alliance, meeting all of its Standards for Charitable Accountability.
Any amount you can donate will be greatly appreciated! Your donation is 100% tax deductible. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation!