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Andre Hessels' Fundraiser:

Run for FA

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Andre Hessels via Crowdrise
January 31, 2016

Thanks again everyone for their donations. We managed to raise over $12,000! This money will be used for further FA research. Thanks so much  See more

BENEFITING: FANCONI ANEMIA RESEARCH FUND INC

EVENT: 2015 Chicago Marathon

EVENT DATE: Oct 11, 2015

Andre Hessels

THE STORY:

Introduction

In January 2013 our lives changed forever. We heard that our children Dylan and Joy have a very rare genetic disease called Fanconi Anemia (FA). Among other things, FA results in bone marrow failure and cancers at a much younger age than the general population. From being an average family, we suddenly transitioned into a family with lots of hospital visits, limited life expectancy for our kids, and uncertainty. How do you react to something like this? We learned early in the process that although we could not choose what life throws at us, we can choose how to respond. And we chose to fight. We also learned that, although we are in a sad situation, we are in a good place. We just moved to New York City and our children are going to Memorial Sloan Kettering Cancer Center, an excellent hospital and one of the few hospitals that knows this rare disease very well. And we found out that we are not alone. We were quickly introduced to the Fanconi Anemia Research Fund (FARF). We found out that FARF is involved in finding a cure, better treatments for FA patients, and family support. FARF is the charity I want to raise funds for by running the Chicago marathon.

 

Why donate?

- Fanconi Anemia (FA) is essentially a DNA repair disorder disease. By understanding FA, researchers better understand the basic biological process of cancer in general. Your contribution will go to further research into FA and is bringing us one step closer finding a cure, not only for FA but also for cancer.

 

- The Fanconi Anemia Research Fund (FARF) receives, year-after-year, a four-star rating by the independent Charity Navigator. This means that your dollars will be well spent and are given to a charity that favours and shows transparency and accountability

 

- Fanconi Anemia is an orphan disease, a condition that affects fewer than 200,000 people in the U.S. For this reason, almost all funding needs to come from families affected by FA. The last two years I ran the NYC marathon with Fred's Team (another great charity). However, this year FARF co-founder Dave Frohnmayer passed away. Dave was an amazing person, and the world definitely is a better place for FA patients and families now then it was 25 years ago when FARF was established. With the passing of Dave, we, however, also miss important access to financial donors. For this reason, other families like mine need to step up and do more fundraising.  

 

The secret to living is giving. By donating to FARF you alleviate the suffering that goes along with a genetic rare disease. Unfortunately, we lost too many FA patients, both children and adults to this awful disease. For now, Joy is doing fine but Dylan is already in bone marrow failure and is on a medicine to increase his hemoglobin and platelets. By donating, you provide hope to FA patients and their families so that FA patients can lead fuller, longer, and healthier lives. By donating, you make a difference. Thanks for your contribution. 

 

 

DONATE

To This Fundraiser

$16,010

MONEY RAISED
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  • Meg and Andy Radcliff

    $500

  • Gordon Family

    $250

  • Korina Noble

    $20

  • Jasper L.

     

  • Bastiaan & Willemien

     

  • Boerma

    $113

  • Jackal

    $50

  • Jan van Helden

    $75

  • Adwin

     

  • Roberto

    $60

  • Kevin and Lorraine McQueen

    $100

  • Marieke & Stevan

    $100

  • BhomberBerend

    $50

  • Martha Jimenez

    $100

  • Machteld en Sybren

    $100

  • Cor

    $80

  • Freek and Astrid van Muiswinkel

    $100

  • Hans en Dominique

    $30

  • Dianne Treep

    $113

  • Fergus Cooney

    $100

  • Martijn en Kim

    $100

  • Joris & Akvile

    $100

  • Gleeson family

    $100

  • Marian Williams

    $100

  • Anonymous

    $50

  • Sandra Krull

    $15

  • Jan en Femmy Hessels

    $113

  • Servaas and Frédérique

    $100

  • Diana Coone

    $25

  • Uit de hoge hoed

     

  • Greg and Claudine Hutton

    $100

  • Baptista Family

    $50

  • Paul Moisselin

    $50

  • Bram Stevens

    $100

  • Maria Fridman

    $100

  • PR

    $50

  • Tony Muoser

    $100

  • Apter family

    $50

  • Floris & Janinka Rooijmans

    $40

  • Gerben & Elke

    $100

  • Eline Boot

    $50

  • Sound of Data

    $100

  • peter niekus

    $25

  • Broeshart Family

    $100

  • Bram Caudri

    $100

  • De Gouden Speld

    $100

  • Thea

    $50

  • Brandweerman

    $60

  • Tom Baerends

    $10

  • Tijmen van den Bovenkamp

    $60

  • Arjan & Inge

    $100

  • Alies & Roel

    $100

  • Chung-Taek Oh

    $100

  • Kalshoven family

    $100

  • The Ferrin Family

    $50

  • Ralph & Tessa

    $100

  • Henk en Geraldine van Dijk

    $50

  • Kevin and Rachael

    $50

  • Brandhout Jonge Honden

    $200

  • Anonymous

    $50

  • Gerard

    $105

  • Wouter

    $25

  • J. & F.

    $84.39

  • Henk en Gretha

    $35

  • Hilde Sijbring

    $50

  • Brunhilde Vergouwen and Jan Joosten

    $250

  • Piet Hein

    $50

  • Rabobank New York branch, matching grant

    $1,416

  • Anonymous

     

  • Eric Fecci

    $100

  • Bernhardt Family

    $100

  • Michelle Lee

    $50

  • Anthony Riguardi

    $50

  • Teuni

    $20

  • Katie and Bret Ericson

    $100

  • John Monica,Sean and Rowan

    $500

  • Anonymous

    $50

  • Stacy and Zephan

    $100

  • The Mesh Family

    $250

  • Kristina Capiak

     

  • DTProost - DTP Studio

    $100

  • Ann Karine

    $25

  • Danielle C

    $50

  • Alfred & Ruth Thompson

    $40

  • Rotundo-Corea Family

    $50

  • Kalshoven family

    $100

  • Lauren Kane

    $25

  • Marion en Henri van der Vegte

     

  • Anonymous

    $25

  • Anonymous

    $250

  • Brinker Family

     

  • Heather, Manny & Jett

    $36

  • Freek & Astrid van Muiswinkel

    $50

  • Tommy, Jennifer, Jonathan & Judith Wilson

    $100

  • Reich Family

    $250

  • Alan Ruben

    $100

  • David Speer

    $54

  • Shawn Tesser

    $100

  • Sharon Schuman

    $100

  • Susan Kersch & Bill Taliaferro

    $100

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160% Raised of $10,000 Goal

The Team: $16,010 TOTAL RAISED SO FAR

Fundraiser Title

Andre Hessels

Amount Raised

$15,835

 

158% Raised of $10,000 Goal

Fundraiser Title

Rob Proost

Amount Raised

$100

Fundraiser Title

Jan van Helden

Amount Raised

$75

Fundraiser Title

F N

Amount Raised

$0

Fundraiser Title

Hilde Sijbring

Amount Raised

$0

Donor Comments

Susan Kersch & Bill Taliaferro

Susan Kersch & Bill Taliaferro

DONATION: $100

2 weeks ago

Sharon Schuman

Sharon Schuman

DONATION: $100

in memory of Amy Frohnmayer, marathoner 9 months ago

Shawn Tesser

Shawn Tesser

DONATION: $100

Strength for Dylan, love for the Hessels Family, a cure for FA ... 1 year ago

David Speer

David Speer

DONATION: $54

For Dylan from my Bernie Sanders campaign fund. ($27 X 2) 1 year ago

Alan Ruben

Alan Ruben

DONATION: $100

1 year ago

Reich Family

Reich Family

DONATION: $250

2 years ago

Tommy, Jennifer, Jonathan & Judith Wilson

Tommy, Jennifer, Jonathan & Judith Wilson

DONATION: $100

2 years ago

Freek & Astrid van Muiswinkel

Freek & Astrid van Muiswinkel

DONATION: $50

2 years ago

Heather, Manny & Jett

Heather, Manny & Jett

DONATION: $36

2 years ago

Brinker Family

Brinker Family

2 years ago