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Susan Leone's Fundraiser:

Susan Leone's NYC Half- Marathon Run for Cornelia de Lange

Susan's Photo
Susan's Photo
Susan's Photo
Susan's Photo
Susan Leone

THE STORY:

I am running this NYC Half Marathon to help raise money and awareness for the CdLS Foundation. When my son Frankie was born 19 years ago he was extremely premature and had missing fingers, missing part of an arm, and was extremely hairy. We knew he had some type of syndrome. In 1993 there was not much information on the syndrome and our family had no place to turn. The physicians gave us no hope and told us to take him home to die. Our family had turned to the CdLS Foundation and we had received excellent information and support over the years. This is a much needed service for all the professionals, families and friends affected by the syndrome and I would like to help raise money for the Foundation so that they can continue to do the amazing work they do. Please help me support their efforts. To this day Frankie is still non-ambulatory and I feel training to raise money will inspire him to someday walk.

DONATE

To This Fundraiser

$710

MONEY RAISED
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  • Diane Scrofani & Anthony Frasca

    $50

  • THE PHILLIPS/SCAPERROTTA FAMILY

    $100

  • Pam

    $25

  • Linda Vellone Squitieri

    $25

  • TJ, Keira, Olivia, Khloe

    $50

  • Anonymous

    $50

  • donny leone

    $50

  • morano family

    $100

  • Martin Burkhardt

    $50

  • Manny Garcia

    $100

  • Uncle Ray & Aunt Paula KS

     

  • Mary Silvestro

    $50

  • Bill & Carol Galdi

    $50

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47% Raised of $1,500 Goal

Fundraise for this Campaign

The Team: $710 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Bill & Carol Galdi

Bill & Carol Galdi

DONATION: $50

5 years ago

Mary Silvestro

Mary Silvestro

DONATION: $50

Good luck my friend! You're unbelievable! 5 years ago

Uncle Ray & Aunt Paula KS

Uncle Ray & Aunt Paula KS

You go for the gold, Susan! The cause is too close to home not to join in the effort even a little bit. 5 years ago

Manny Garcia

Manny Garcia

DONATION: $100

You make me tire! Love you, Liana 5 years ago

Martin Burkhardt

Martin Burkhardt

DONATION: $50

5 years ago

morano family

morano family

DONATION: $100

5 years ago

donny leone

donny leone

DONATION: $50

5 years ago

Anonymous

ANONYMOUS

DONATION: $50

5 years ago

TJ, Keira, Olivia, Khloe

TJ, Keira, Olivia, Khloe

DONATION: $50

5 years ago

Linda Vellone Squitieri

Linda Vellone Squitieri

DONATION: $25

5 years ago