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Sandra Darvish's Fundraiser:

Run for HIBM - 2013

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BENEFITING: ADVANCEMENT OF RESEARCH FOR MYOPATHIES

EVENT DATE: Mar 17, 2013

Sandra Darvish

THE STORY:

All the runners on this page know one or more patients with HIBM, a rare muscle disorder, and are running to support their friends or loved ones! Research is moving forward, soon no one will have to suffer from this debilitating disease, thanks to all the volunteers and fundraisers that helped raise funds for research on HIBM!

"My husband has this rare muscle wasting disorder that nobody has heard of unless you know someone who is affected, called HIBM. With his brother, who suffers from the same (yes, it's hereditary), he started a non-profit, ARM (Advancement of Research for Myopathies), to raise funds for research. In 10 years they have done an amazing job in finding treatments for this disease, and now they have moved research forward to clinical trials with two possible treatments. Patients are testing treatments for this disease! The next step will be gene therapy, and eventually stem cell therapy to bring back lost muscle.... I will run the marathon to raise funds for HIBM research!" - Sandra Darvish

 

DONATE

To This Fundraiser

$9,124

MONEY RAISED
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  • Bobby & Sandra Darvish

     

  • Inka and Norman

     

  • PAMA Aries

     

  • Erik & Joy Rowtliep

     

  • Nadia Adhami

     

  • Aida Metzenberg

     

  • Ms. Helen Rabizadeh Zaghi

     

  • Evelyn Lahiji & Parham Naghdechi

     

  • negar k

     

  • Patti Engel, Engage Health

     

  • Ana V

     

  • Robin Valles

     

  • G Valles

     

  • Jeff Grubb

     

  • Mary Knezevich

     

  • Arman Haghighatgoo

     

  • Kia Kermani

     

  • Sunny Nassim

     

  • Christopher Wilson - barefoot runner

     

  • Offline Donation

     

  • Danielle Miller

     

  • Sikander Yar Khan

     

  • samsam Aries

     

  • Armen Dumas

     

  • Abtin Missaghi

     

  • Anonymous

     

  • Kim Van de Wetering

     

  • Armen and Rita Dumas

     

  • Breda Carroll

     

  • Tara Voogel

     

  • Sheila

     

  • Patrick van Inka

     

  • Shawn Gabbaie

     

  • PAYAM and Shadi Vahedifar

     

  • Derek Abbassi, MD

     

  • Lorrie Jones

     

  • Remko, Angelique, Isabel, Olivia

     

  • Mike Stork

     

  • carolyn witcomb

     

  • Kristen Akervik

     

  • Dorene and Paul Rutter

     

  • Randi Woodrow

     

  • Ciara Monaghan

     

  • C&S Kunkel

     

  • Dean and Susan Yamaguchi

     

  • Sam Koutal and Judy Miranda

     

  • Anonymous

     

  • Todd King

     

  • Julie L.

     

  • samsam Aries

     

  • A.J. Gilman & Antonio Tamariz

     

  • Evan and Sonja

     

  • m.ann porter

     

  • Annette Madriaga

     

  • Joey & Tracy

     

  • Dorothy Taylor and Taylor Hines

     

  • Anastasia, Ed & Julia Alton

     

  • Shahla, Ezzy & Sandra Simnegar

     

  • Jim & Laina Curran

     

  • Stephanie Baker and Jeff Werner

     

  • Janet McElroy

     

  • Margaret McCann

     

  • Ken H

     

  • Steven bunte

     

  • Anonymous

     

  • kenneth takayama

     

  • Crystal Barker

     

  • The McElroys

     

  • Shari Missaghi Fisher

     

  • Shari Missaghi

     

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46% Raised of $20,000 Goal

The Team: $9,124 TOTAL RAISED SO FAR

Fundraiser Title

Sandra Darvish

Amount Raised

$5,819

 

29% Raised of $20,000 Goal

Fundraiser Title

Bryan McElroy

Amount Raised

$835

 

17% Raised of $5,000 Goal

Donor Comments

Shari Missaghi

Shari Missaghi

4 years ago

Shari Missaghi Fisher

Shari Missaghi Fisher

4 years ago

The McElroys

The McElroys

4 years ago

Crystal Barker

Crystal Barker

4 years ago

kenneth takayama

kenneth takayama

4 years ago

Anonymous

ANONYMOUS

4 years ago

Steven bunte

Steven bunte

4 years ago

Ken H

Ken H

4 years ago

Margaret McCann

Margaret McCann

Glad I could help Bryan 4 years ago

Janet McElroy

Janet McElroy

Proud of your accomplishment, Bryan! 4 years ago