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Tara Voogel's Fundraiser:

run for hibm 2013

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BENEFITING: ADVANCEMENT OF RESEARCH FOR MYOPATHIES

EVENT DATE: Mar 17, 2013

Tara Voogel

THE STORY:

My name is Tara and  I have been suffering from a disease known as Hereditary Inclusion Body Myopathy or HIBM. Over the past 10 plus years, I have  gone from being a very active productive person to now, having to wear leg braces to walk, wheel chair, and other assitive devices to be able to go out of my home.  I also depend on others for assistance.

  It is a very humbling experience to see my physical abilities deteriorate.  HIBM is  a progressively weakening muscle disease and eventually renders those afflicted with it totally unable to physically take care of themselves. HIBM has affected me in my most  productive years and continues.

The two young men representing me volunteered to run in the LA marathon to bring increased awareness and to help raise funds for ARM (Advancement for Research Myopathies) organisation.  In 10 years they have done an amazing job in finding treatments for this disease, and now they have moved research forward to clinical trials with two possible treatments. Patients are testing treatments for this disease! The next step will be gene therapy, and eventually stem cell therapy to bring back lost muscle.... 

 I kindly ask for your support and donations so we can get to human gene therapy trials for HIBM.  One of my hopes is that someday I will be able to walk and even run on my sandy local beach, so I could feel what it's like to walk barefoot on sand again.

Note: Donations are tax deductible.

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To This Fundraiser

$1,910

MONEY RAISED
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  • Anonymous

    $100

  • Liz Singh-Juarez

    $25

  • Herman Voogel, Jr.

    $100

  • Anonymous

    $100

  • Minache Sawh

    $10

  • Brian & Kristine

    $100

  • Nitin Mohan

    $101

  • Direct Marketing Partners

    $50

  • Anonymous

    $301

  • Mukti Patel

    $101

  • Anonymous

    $501

  • Anonymous

    $101

  • Lisa Pearson

    $100

  • Chandra and Ram Ramsaran

    $20

  • Joe Stern

    $200

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38% Raised of $5,000 Goal

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The Team: $1,910 TOTAL RAISED SO FAR

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Donor Comments

Joe Stern

Joe Stern

DONATION: $200

For my Daughter Harmony Frederick 4 years ago

Chandra and Ram Ramsaran

Chandra and Ram Ramsaran

DONATION: $20

In search of a cure for my 4 siblings 4 years ago

Lisa Pearson

Lisa Pearson

DONATION: $100

4 years ago

Anonymous

ANONYMOUS

DONATION: $101

All the best 4 years ago

Anonymous

ANONYMOUS

DONATION: $501

Positive thoughts and prayers. 4 years ago

Mukti Patel

Mukti Patel

DONATION: $101

With best wishes. 4 years ago

Anonymous

ANONYMOUS

DONATION: $301

A tribute to all the work and efforts in finding a cure! God Bless! 4 years ago

Direct Marketing Partners

Direct Marketing Partners

DONATION: $50

In honor of Nitin Mohan 4 years ago

Nitin Mohan

Nitin Mohan

DONATION: $101

Thanks for all your efforts! I hope that gene therapy brings us the cure. 4 years ago

Brian & Kristine

Brian & Kristine

DONATION: $100

Kudos to your dedication to scientific research and to your persistence in getting all you can out of life! 4 years ago