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Sandra Darvish's Fundraiser:

Run for HIBM - 2014

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BENEFITING: ADVANCEMENT OF RESEARCH FOR MYOPATHIES

EVENT DATE: Apr 21, 2014

Sandra Darvish

THE STORY:


BOSTON MARATHON - APRIL 21, 2014

All the runners on this page know one or more patients with HIBM, a rare muscle disorder, and are running to support their friends or loved ones! Research is moving forward, soon no one will have to suffer from this debilitating disease, thanks to all the volunteers and fundraisers that helped raise funds for research on HIBM!

"My husband has this rare muscle wasting disorder that nobody has heard of unless you know someone who is affected, called HIBM. With his brother, who suffers from the same (yes, it's hereditary), he started a non-profit, ARM (Advancement of Research for Myopathies), to raise funds for research. In 15 years they have done an amazing job in finding treatments for this disease, and now they have moved research forward to clinical trials with two possible treatments. Patients are testing treatments for this disease! The next step will be gene therapy, and eventually stem cell therapy to bring back lost muscle.... I will run the marathon to raise funds for HIBM research!" - Sandra Darvish

$7,644

MONEY RAISED
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  • Mike Stork

    $100

  • Yadira

    $100

  • Kristen Akervik

    $50

  • Norman & Inka

    $200

  • Stork Bro

    $101

  • Cara E. Yar Khan

    $500

  • Bond

    $100

  • Shawn and Betty Gabbaie

     

  • Randi Woodrow

    $50

  • Abtin Missaghi

     

  • Nadia Adhami

    $300

  • Donations from Holland

    $2,000

  • Paul and Susan Handy

    $100

  • Ilse en Merijn

    $25

  • carolyn witcomb

    $50

  • Louis Trygar

    $50

  • Thomas Garrick

    $50

  • Arash Asher

    $50

  • ANGELICA LOZANO

    $100

  • Alex Chang

    $20

  • Armen and Rita Dumas

    $100

  • Lawrence Miller

    $500

  • Sandi B

    $40

  • C&S Kunkel

    $100

  • Jacqueline Levian

    $50

  • Anonymous

    $10

  • Erik Rowtliep

    $100

  • Anne Keenan

    $100

  • Linda Curran

    $100

  • Katinka

    $50

  • Gibson intl

    $30

  • Eric Singer

    $100

  • Tracey Hennessey

    $50

  • Emily brown

    $25

  • Anonymous

    $50

  • Jim Bremner and Anne Bruner

    $100

  • Anonymous

    $20

  • Kaaren Kurtzman

    $50

  • Rosangela Carbajo

    $30

  • Ken Rota

    $50

  • Brandon

    $150

  • Anonymous

    $50

  • tannaz

     

  • B. Hoang

    $50

  • Anonymous

     

  • Shokouh Darvish

    $152

  • Judi and Chuck

    $200

  • Payam Emdad

    $100

  • Janet

    $50

  • Teresita Alviar

    $20

  • Tina Cameron

    $20

  • Rush Legal Services/Tony Baik

    $210

  • Jason and Lola

    $50

  • Scott and Pat

    $100

  • Anonymous

    $50

  • Dean Yamaguchi

    $100

  • Jeff Grubb

    $15

  • Lynn Whitaker

    $25

  • Carla Winnie

    $50

  • Judy Orsini

    $50

  • Anonymous

    $20

  • Isabel en Olivia

    $75

  • Matthew O'Keefe

    $100

  • D Cameron

    $100

  • Desiree Calderone

    $20

  • Masami Fukuhara

    $26

  • Lisa DiForte

    $50

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76% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $7,644 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sandra Darvish

Amount Raised

$5,894

 

59% Raised of $10,000 Goal

Donor Comments

Lisa DiForte

Lisa DiForte

DONATION: $50

Thank you Sandra!! This donation is from the first month jewelry sales from my Etsy Shop. Please share the link below, profits will go to fund HIBM research. https://www.etsy.com/uk/listing/185120573/turquoise-and-gold-swirl-lampwork?ref=listing-shop-header-3 3 years ago

Masami Fukuhara

Masami Fukuhara

DONATION: $26

Go Sandra! Have a great race :) 3 years ago

Desiree Calderone

Desiree Calderone

DONATION: $20

Good luck Sandra!!! I'll be thinking of you! 3 years ago

D Cameron

D Cameron

DONATION: $100

3 years ago

Matthew O'Keefe

Matthew O'Keefe

DONATION: $100

3 years ago

Isabel en Olivia

Isabel en Olivia

DONATION: $75

Zet 'em op San! 3 years ago

Anonymous

ANONYMOUS

DONATION: $20

Goodluck ! 3 years ago

Judy Orsini

Judy Orsini

DONATION: $50

3 years ago

Carla Winnie

Carla Winnie

DONATION: $50

I really admire you, Bryan. Your kindness really makes a difference. I will be cheering for you! 3 years ago

Lynn Whitaker

Lynn Whitaker

DONATION: $25

3 years ago