BENEFITING: BRAIN RESEARCH FOUNDATION
EVENT DATE: Sep 21, 2014
Hello Friends and Family!
On Sunday, September 21st, I am running the Omaha Marathon. You might think I'm doing this because I'm constantly trying to lose weight and I can no longer say “I just had a baby” (ten years ago)J, however there is something greater inspiring me to take action for a greater cause.
I am running in honor of my brave, 5 year old niece, Lily Clapper! On Thursday, May 17, 2012 Lily experienced her first tonic clonic seizure. Since that day she has endured approximately 2,000 seizures. Diagnosed with a rare form of early childhood epilepsy called Doose Syndrome (Myoclonic-Astatic Epilepsy or MAE), this cruel condition is often resistant to medication. Lily has been undergoing intense medical treatment provided by amazing doctors at Denver's Children’s Hospital as well as specialists at the Children's Hospital in Boston and is on a specific diet created for children, like her, with MAE.
Also, another reason to take action, is for my dad who passed away from a stroke a year ago. Throughout his illness and Lily’s struggles, it’s became very apparent to me that there simply is not enough research on prevention and treatment of neurological diseases. So, although I may very well place last in the race, I am using this opportunity to raise $500 for The Brain Research Foundation in honor of little Lily and in memory of my wonderful dad.
The Brain Research Foundation supports neuroscience research (epilepsy and strokes) that leads to advanced understanding of brain function in children and adults. To learn more about The Brain Research Foundation, please visit http://www.thebrf.org/Pages/Our+Mission. To learn more about Doose Syndrome, please visit http://doosesyndrome.org/.
If you would like to donate, please click on the orange DONATE.
I am motivated and excited to help raise funds to support such a worthy cause. I promise to spare you post-race pictures, and thank you in advance for your support of this important research.