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amanda serio's Fundraiser:

Run for Roc

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BENEFITING: SMS RESEARCH FOUNDATION

EVENT DATE: May 27, 2012

amanda serio

THE STORY:

What started out a few months ago as a personal challenge - to get in better shape and finish my first ever 1/2 marathon, has turned into an opportunity to help someone that I love and to raise money in support of research for Smith- Magenis syndrome. 

Smith-Magenis is a little know genetic disorder with approximately 600 diganosed cases worldwide, however it is estimated that it affects one in 25,000 people. One little boy affected by this disorder is an adorable 4 year-old, blonde haired, blued eyed dynamo who I adore and cherish more than I ever thought possible - my son Rocco.  He is a smart, funny, warm and loving little boy who struggles daily with the effects of SMS.

SMS is the result of a small missing piece of genetic material within the 17th chromosome; this is known as a microdeletion.   This deletion results in a host of symptoms of which the number and severity vary. Most common are a a disturbed sleep pattern with frequent nightime and/or early morning awakenings and daytime sleepiness; decreased sensitivity to pain, developmental delays, self injury and frequent and sometimes prolonged tantrums.  You can imagine that as a parent the combination of self injury and a high pain threshold are particulary diffiult to endure.  To learn more about SMS and other SMS traits, you can visit  www.prisms.org.

I am running in support of the Smith-Magenis Research Foundation whose mission it is to support research to improve the knowledge and understanding of Smith-Magenis Syndrome so that viable therapeutic options can be developed to improve the quality of life of those with SMS.

 I understand that I am starting my fundraising late - but as they say, better late than never.  So little is known about this syndrome and every dollar contributed can make a difference.  

 

DONATE

To This Fundraiser

$8,875

MONEY RAISED
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  • carol, dan and sherm spritz

    $75

  • Jason Zagami

    $25

  • Sharon Brown

    $50

  • Marcie loves ROC!

    $100

  • Aly Montes

    $25

  • Brian Oates

     

  • Elaine Tocci

    $100

  • Lynn Volpini

    $20

  • Kate Ngo

    $25

  • Susan Remkiewicz

     

  • Your adoring husband

    $250

  • Colin Comer

    $100

  • Erica Mallett

    $25

  • Malcolm and Christina Welford

    $50

  • The Dougherty Family

    $50

  • Baigell/Kon Family

    $25

  • Kate Sheridan

    $25

  • Sue DeSilva Baylow

    $25

  • Anne Cowie

    $25

  • Auntie Erika and Auntie Jeannie

    $200

  • Jen Fabrizi

    $75

  • Jen Shelgren

    $50

  • Betsy Hornik

    $30

  • Sheila Taylor

    $25

  • Martha Johnson

    $500

  • chris lynch

    $100

  • Wilna Serio Krekorian

    $75

  • Nora Kennedy

     

  • Allison Lyons Saunders

    $50

  • The Basile Family

     

  • Alison L'Heureux

    $50

  • Peter and Diane

    $100

  • Leo and Heidi Carroll

    $50

  • cb

     

  • Jeanne Schad

    $25

  • Jennifer Bruni

     

  • LINDY & JIMMY

    $100

  • ILIA AND NICK

    $100

  • Susie Kleinman

    $25

  • Antonellis Family

    $100

  • Your friends at Bluefish

     

  • Teresa Bottaro

    $25

  • Sue Lydon Morrell

    $50

  • The Billingsley's

    $25

  • John Young and Melanie Lowe

    $100

  • Burton - Kirdahy Family

    $100

  • Kavin and Saniya

    $100

  • Victoria Shonkoff

    $50

  • Julie Barrett O'Brien

     

  • The Sumner Family

    $50

  • Terri and Peter

    $100

  • To Rocco, Love Bella in Canada

    $50

  • Heather Mustard Lovett

    $25

  • Alison de Cadenet

    $25

  • Joshua, Vickie, Nicollette & Elijah

    $100

  • Sara Mendes

    $25

  • Kim Steimle and Michael Vaughan

    $100

  • Liz Collins

    $100

  • Elaine Shore

    $50

  • Jenn H

    $25

  • Diane Jewell Bennink

    $25

  • Leah and Jay Pennino

    $50

  • Danielle Vlahos

    $25

  • Theresa Haddad

    $20

  • Andrea Bruce

    $100

  • Anonymous

    $100

  • The Voke Family

    $500

  • Jami

    $50

  • Jen Bousquet

    $100

  • KP Richardson

    $50

  • Gail and Bill Fine

    $50

  • Oliver

    $40

  • The Karle Family

    $50

  • Randy & Denise Breton

     

  • Judy Theriault

    $25

  • Anonymous

    $500

  • Joanna Hartunian

    $25

  • Melissa Rose

     

  • Alli Turner

    $20

  • Full Contact Advertising

    $300

  • Amy Rappeport

    $50

  • Lenny - Meef Tocci

    $100

  • Kerry Cannon

    $25

  • Kim Lehouiller

    $50

  • The Eatons

    $100

  • Nancy Cushman

    $100

  • Kath

    $75

  • Kir & Doug

    $50

  • Rebekah Splaine

    $50

  • Lisa and Kirk

    $100

  • Suffolk Construction

    $200

  • Rocco R. Carlino III

    $25

  • Corren Collura

    $50

  • Kate

     

  • Cindy G. & Matt H.

    $25

  • Peter Campot

    $250

  • Erin Brooks

    $50

  • Sam & Gus Gallo

     

  • Anonymous

     

  • Dave Nace

    $50

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178% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $8,875 TOTAL RAISED SO FAR

Fundraiser Title

amanda serio

Amount Raised

$8,400

 

168% Raised of $5,000 Goal

Fundraiser Title

Alex Finigan

Amount Raised

$100

Fundraiser Title

chris lynch

Amount Raised

$100

Fundraiser Title

saniya bloomer

Amount Raised

$100

Fundraiser Title

Jennifer Fabrizi

Amount Raised

$75

Fundraiser Title

Sharon Brown

Amount Raised

$50

Fundraiser Title

Jen Shelgren

Amount Raised

$50

Fundraiser Title

Robert Lepofsky

Amount Raised

$0

Donor Comments

Dave Nace

Dave Nace

DONATION: $50

Sorry I'm so late with the donation. Not a facebook junkie yet, but I'm working up to it. Well done Amanda! 5 years ago

Anonymous

ANONYMOUS

Wish I could help more. 5 years ago

Sam & Gus Gallo

Sam & Gus Gallo

In honor of our buddy, Rocco. We love you guys! xoxo :) 5 years ago

Erin Brooks

Erin Brooks

DONATION: $50

5 years ago

Peter Campot

Peter Campot

DONATION: $250

5 years ago

Cindy G.  & Matt H.

Cindy G. & Matt H.

DONATION: $25

5 years ago

Kate

Kate

Good Luck Amanda! 5 years ago

Corren Collura

Corren Collura

DONATION: $50

5 years ago

Rocco R. Carlino III

Rocco R. Carlino III

DONATION: $25

5 years ago

Suffolk Construction

Suffolk Construction

DONATION: $200

5 years ago