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Alycia Winter's Fundraiser:

TSF 2017 Hartford Marathon

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BENEFITING: The Susie Foundation Inc

ORGANIZER: The Susie Foundation Inc

EVENT DATE: Aug 01, 2017

Alycia Winter

THE STORY:

The Susie Foundation Inc wrote -

 Welcome to the Run for Susie! team fundraising page for the 2017 Hartford Marathon! Though you will find more information about who we are, what we do, and why we’re running to support local patients and families living with ALS across Connecticut, we just want to take a second to thank you for your incredible support! Truthfully, we couldn't do any of the work we do without the love and support of folks like you. So thank you for visiting this page to find out more about our Run for Susie! program and (hopefully!) electing to sponsor a runner in the 2017 Hartford Marathon. In doing so, you are joining this work by lending your love and contributing your treasure to local families who need it most – thank you!  

DONATE

To This Fundraiser

$195

MONEY RAISED
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  • Dennis & Carol Libby

     

  • Anonymous

    $50

  • Lisa Votto

    $25

  • Christina Slot

    $10

  • Finley and Madeleine Winter

    $100

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Fundraise for this Campaign

  • The Story
    What would you do if you or someone you loved was facing an ALS diagnosis?

    To begin to understand that reality - a reality that's faced each day by over 220 families here in Connecticut - you first must appreciate the fears and questions that quickly follow diagnosis. How will ALS affect my quality of life? How will my family be impacted? How will we continue make ends meet financially?

    Here at The Susie Foundation we know these questions well. Through our personal experience with ALS we know how challenging these questions are, and how heart-wrenchingly evasive the answers can prove to be.

    Our mission here at The Susie Foundation is simple: to provide reliable and on-going support services to persons, families, and caregivers living with ALS in Connecticut. In executing this mission, we administer financial assistance and non-medical support programs that directly benefit Connecticut families, while also striving to lend our voice to the broader goals of bringing greater community awareness, understanding, and appreciation of the disease.

    To support this mission, we need your help. Most specifically, you need your help to support our incredible team of runners who are tackling the 2017 Hartford Marathon to benefit local families living with ALS across Connecticut!

    Our Run for Susie! team is comprised of folks who are dedicated to fighting ALS by logging miles to bring awareness and raise funds to help those in-need in our community. By donating to a team member, or to the campaign as a whole, you can rest assured that you are supporting these ends and be confident that every single penny (that's right, 100% of your gift!) will go to a family living with ALS in Connecticut.

    Thank you for considering contributing to our work and, to find out more, please visit us at: www.TheSusieFoundation.org

  • The Susie Foundation Story
    The roots of The Susie Foundation can be traced back to November 7th 2009 – the day Susan Ready Matthews was diagnosed with Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig’s Disease). While struggling with the disease, Susan and her family took their first foray into fundraising, raising over $11,000 in 2010 in support of Susan’s Walk to Defeat ALS and The ALS Association of Connecticut. The outpouring of love and support during this fundraising effort helped to provide Susan with hope and optimism, furthering her resolve as she struggled with the worst ALS has to offer.

    Following Susan’s passing on April 17th 2011, her family decided to continue this legacy of service, launching The Susie Foundation in 2013 with the hope of alleviating some of financial burdens levied on individuals and families following diagnosis. Since that time – and while being wholly volunteer led – The Susie Foundation has raised over $100,000 to support persons living with ALS in Connecticut.

    The Susie Foundation is working tirelessly to build on this legacy of service to ensure local persons living with ALS, as well as their families and caregivers, can access life-enhancing funding, services, and technologies to ensure they are able to continue to lead rich and meaningful lives.

    What is ALS?

    Amyotrophic lateral sclerosis (ALS or Lou Gehrig’s Disease) is a progressive neurodegenerative disease that effects the motor neurons in the brain and spinal cord that control voluntary muscle movement. This progressive degeneration continues until these motor neurons die, severing the brain’s ability to initiate and control muscle movement, including the ability to speak, eat, move, and, ultimately, breath. Roughly 75% of all ALS patients begin to experience muscle weakness in the hands, arms, feet, or legs, which is called limb-onset ALS, and the remaining 25% of people with ALS first show signs of slurred speech, which is called bulbar-onset ALS. No the type, ALS is 100% fatal and there is no known cure. Most people with ALS live about 2-5 years after experiencing their first signs of the disease.

    What are some treatments available to those living with ALS?

    As there is no known cure (though there are promising emerging treatments, including those focused on stem cell, antioxidant, motor neuron shielding, and immune system-modulating strategies), the “treatment” of ALS boils down to symptom management. ALS requires a multi-disciplinary approach that ensures a persons physical, psychological, and nutritional needs are all being met. This requires a team of therapists (e.g. speech, occupational), caregivers, and palliative specialists, in addition to assistive technology, which can include invasive/non-invasive ventilators, power wheelchairs, and eye tracking technology.

    Contact Information

    Website: www.TheSusieFoundation.org
    Social: Facebook, Twitter, Instagram
    Phone: 203-217-4884
    Email: Ryan.Matthews@TheSusieFoundation.org

The Team: $5,155 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Ryan Matthews

Amount Raised

$1,215

 

81% Raised of $1,500 Goal

Fundraiser Title

Jessica Trzaski

Amount Raised

$525

 

105% Raised of $500 Goal

Fundraiser Title

Amanda Norwich

Amount Raised

$420

Fundraiser Title

Dayna Chucta

Amount Raised

$360

 

72% Raised of $500 Goal

Fundraiser Title

Cara Michelle

Amount Raised

$325

Fundraiser Title

Darnell Brown

Amount Raised

$285

 

57% Raised of $500 Goal

Fundraiser Title

Mary Stocking

Amount Raised

$275

 

110% Raised of $250 Goal

Fundraiser Title

Christopher Hershey

Amount Raised

$275

Donor Comments

Finley and Madeleine Winter

Finley and Madeleine Winter

DONATION: $100

7 days ago

Christina Slot

Christina Slot

DONATION: $10

Go Alycia! 2 weeks ago

Lisa Votto

Lisa Votto

DONATION: $25

2 weeks ago

Anonymous

ANONYMOUS

DONATION: $50

2 weeks ago

Dennis & Carol Libby

Dennis & Carol Libby

2 weeks ago