BENEFITING: Children's Tumor Foundation
ORGANIZER: Children's Tumor Foundation
EVENT: NFE | 2015 TCS NYC Marathon
EVENT DATE: Nov 01, 2015
Children's Tumor Foundation wrote -
TEAM Run for Your Dream is running the 2015 TCS New York City Marathon for the Children's Tumor Foundation, in honor of NF Hero Kate.
Kate is an 8 year old second grader with Neurofibromatosis type 1. She has had this disorder all of her life, but she was diagnosed at 3 years old. She goes to biannual MRI appointments and annual orthopedic, human genetics, neurologist, and opthomologist appointments. She has to go to physical and occupational therapy. She also has to wear special shoes and inserts called SMO's. She is just like a normal 2nd grader though. She loves to ride her bike, play outside, play Barbies, and go to school. She is a NF Hero.
Neurofibromatosis, or NF, encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves anywhere on or in the body, causing in moderate to severe cases disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumors; loss of limbs; malignancies; and learning disabilities.
NF can appear in any family. NF occurs in 1 in 3000 births; is worldwide in distribution; affects both sexes equally; and has no particular racial, geographic or ethnic distribution.
The Children's Tumor Foundation is a non-profit organization dedicated to Ending NF Through Research, and to improving the health and well-being of individuals and families affected by NF.
Our mission is to advance peer-reviewed research to develop treatments and cures for NF; support persons with NF and their families by making thorough and accurate information readily available; assist in developing clinical centers and best practices to improve access to quality healthcare for those who live with NF; and expand public awareness of NF to improve diagnoses, increase understanding of the challenges that NF presents, and encourage support for NF research.
There is currently no effective treatments nor a cure, but you can help! Support our team today!
1. You can click on the DONATE button to contribute what you can on behalf of one of NF Endurance team members.
2. You can REGISTER to become join the team yourself and help us raise the much-needed funds and spread the word about this cause.
3. You can volunteer your time during race week and on race day to welcome, support and encourage our runners.
Please email us at firstname.lastname@example.org with any questions!