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Javi Tabarly's Fundraiser:

TEAM Run for Your Dream

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BENEFITING: Children's Tumor Foundation

ORGANIZER: Children's Tumor Foundation

EVENT: NFE | 2015 TCS NYC Marathon

EVENT DATE: Nov 01, 2015

Javi Tabarly

THE STORY:

Children's Tumor Foundation wrote -

TEAM Run for Your Dream is running the 2015 TCS New York City Marathon for the Children's Tumor Foundation, in honor of NF Hero Kate.  

Kate is an 8 year old second grader with Neurofibromatosis type 1. She has had this disorder all of her life, but she was diagnosed at 3 years old. She goes to biannual MRI appointments and annual orthopedic, human genetics, neurologist, and opthomologist appointments. She has to go to physical and occupational therapy. She also has to wear special shoes and inserts called SMO's. She is just like a normal 2nd grader though. She loves to ride her bike, play outside, play Barbies, and go to school. She is a NF Hero.

Neurofibromatosis, or NF, encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves anywhere on or in the body, causing in moderate to severe cases disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumors; loss of limbs; malignancies; and learning disabilities.

NF can appear in any family. NF occurs in 1 in 3000 births; is worldwide in distribution; affects both sexes equally; and has no particular racial, geographic or ethnic distribution. 

The Children's Tumor Foundation is a non-profit organization dedicated to Ending NF Through Research, and to improving the health and well-being of individuals and families affected by NF.

Our mission is to advance peer-reviewed research to develop treatments and cures for NF; support persons with NF and their families by making thorough and accurate information readily available; assist in developing clinical centers and best practices to improve access to quality healthcare for those who live with NF; and expand public awareness of NF to improve diagnoses, increase understanding of the challenges that NF presents, and encourage support for NF research.

There is currently no effective treatments nor a cure, but you can help!  Support our team today!

1. You can click on the DONATE button to contribute what you can on behalf of one of NF Endurance team members.

2. You can REGISTER to become join the team yourself and help us raise the much-needed funds and spread the word about this cause.

3. You can volunteer your time during race week and on race day to welcome, support and encourage our runners.

Please email us at nfendurance@ctf.org with any questions!

Thank you!

DONATE

To This Fundraiser

$635

MONEY RAISED
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  • Anonymous

    $50

  • Gunde

    $25

  • Gorron Tours: NY 15

    $25

  • Agnès D.

    $15

  • Kike

     

  • Daniela Tabarly

    $50

  • Yolan and Berry

    $10

  • SANDRINE

    $10

  • Rokia

    $20

  • VERO

    $20

  • Jasmin-Barcelona

     

  • anonimo

     

  • Pedro

    $25

  • Andrés

    $10

  • Anonymous

    $10

  • Nurita

    $20

  • Elenita miranda

    $50

  • Rubén Pérez

    $15

  • Juan Jesus Martin

    $25

  • Isabelino

    $20

  • tere

    $30

  • Délio Pescada

    $20

  • Ani

    $50

  • Jeronimo Perez Fuentes

    $50

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The Team: $4,790 TOTAL RAISED SO FAR

Fundraiser Title

Vladislav Loginov

Amount Raised

$3,855

Fundraiser Title

Javi Tabarly

Amount Raised

$635

Fundraiser Title

Children's Tumor Foundation

Amount Raised

$200

 

1% Raised of $30,000 Goal

Fundraiser Title

ELIZAVETA SLAVINA

Amount Raised

$50

Donor Comments

Jeronimo Perez Fuentes

Jeronimo Perez Fuentes

DONATION: $50

Por una buena causa 2 years ago

Ani

Ani

DONATION: $50

2 years ago

Délio Pescada

Délio Pescada

DONATION: $20

2 years ago

tere

tere

DONATION: $30

2 years ago

Isabelino

Isabelino

DONATION: $20

2 years ago

Juan Jesus Martin

Juan Jesus Martin

DONATION: $25

Rendirse no es una opción. 2 years ago

Rubén Pérez

Rubén Pérez

DONATION: $15

Tu escudo Bravo te espera ;) 2 years ago

Elenita miranda

Elenita miranda

DONATION: $50

Mi pequeño grano de arena//my little grain of sand... 2 years ago

Nurita

Nurita

DONATION: $20

2 years ago

Anonymous

ANONYMOUS

DONATION: $10

2 years ago