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Kim Rosenbarger's Fundraiser:

Running for Mila

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Kim Rosenbarger

THE STORY:

Dear family and friends I will be running Bolder Boulder on Memorial Day in honor of our dear friend Mila. August and Mila have known each other since birth, as Mila's mommy and I were in birth class together! Mila has recently been diagnosed with Batten Disease, a rare, neurodegenerative disease that robs previously normal children of all of their abilities. They lose their vision, suffer cognitive impairment, have seizures, require a feeding tube, and then die between childhood and adolescence. There is no cure... yet. As you can imagine, Julia and her family are devastated. But they rallied and started a foundation - Mila's Miracle Foundation to Stop Batten - and partnered with a team of world-renowned scientists to start one of the most cutting-edge gene therapy trials ever conducted; there are only a handful of gene therapy trials in the world today that target the brain directly. Their hope is that their trial will give Mila and other children like her a good chance at life, and contribute to advances in similar genetic trials for Alzheimer’s, Parkinson’s, etc. that affect millions of people worldwide. Julia is doing everything in her power to make this trial happen, but she can't do it alone. Please consider donating to my Bolder Boulder fundraiser as I run for Mila! Cheers Kim

DONATE

To This Fundraiser

$325

MONEY RAISED
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  • Margaret and John Budde

    $50

  • Joanna and Zach

     

  • Vicki and Bruce Leigh

    $50

  • Tommy and Jacki

    $50

  • Kate and Ryan

     

  • The Halterman Family

    $25

  • Jim and Mara-Lea

    $50

  • Ken and Hella Budde

    $50

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Fundraise for this Campaign

The Team: $325 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Ken and Hella Budde

Ken and Hella Budde

DONATION: $50

4 months ago

Jim and Mara-Lea

Jim and Mara-Lea

DONATION: $50

4 months ago

The Halterman Family

The Halterman Family

DONATION: $25

Good luck, Kim. Sending prayers for Mila and her family. 4 months ago

Kate and Ryan

Kate and Ryan

5 months ago

Tommy and Jacki

Tommy and Jacki

DONATION: $50

5 months ago

Vicki and Bruce Leigh

Vicki and Bruce Leigh

DONATION: $50

In memory of my mom and my mother-in-law. Love and miss both of them. 5 months ago

Joanna and Zach

Joanna and Zach

Running for Mila 5 months ago

Margaret and John Budde

Margaret and John Budde

DONATION: $50

5 months ago