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National Organization for Rare Disorders, Inc.'s Fundraiser:

Running for Rare - Hartford Full and Half Marathon

National Organization for Rare Disorders, Inc.'s Photo

THE STORY:

For the ninth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services.  Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

DONATE

To This Fundraiser

$8,767

MONEY RAISED
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  • KENNETH MUNROE

    $50

  • Tammy Herlitz

     

  • Stack Family

    $50

  • J. Gregory

    $50

  • Helen Klodnitsky

    $50

  • Karen Norton

    $100

  • Stacey Britton

    $50

  • Melissa Neufell

    $50

  • Aya

    $10

  • Chris Farrell

    $50

  • Karen Plantinga

     

  • Melissa & Stephen Martocchio

    $25

  • Maria Fitzgerald

    $50

  • Brian Auger

     

  • Natalia Cueria

    $50

  • F. Goroza

     

  • Larisa & Roman Primak

    $100

  • Bowling Fundriser - Raffle Tickets

    $265

  • Anonymous

    $50

  • Lorraine and Kevin mcqueen

    $100

  • Ellie Martin

    $50

  • Anonymous

     

  • Rachel Calovich

    $25

  • Kim Hardin

    $25

  • Joann March

    $25

  • Baby James

    $25

  • Jennifer Moss

    $25

  • Rif

    $50

  • Mark & Vicki Brinkman

    $50

  • Eileen Scotti

    $25

  • Jamie Bailey

     

  • Alexei Belenky

    $50

  • Elizabeth Hoey

    $10

  • Patty Grace

    $50

  • Anthony

    $50

  • Whitney V

    $75

  • Kim Hawkins

    $50

  • Kevin and Adrienne Capaldo

     

  • Bill Rojcewicz

    $25

  • Kathy Schwartz

    $50

  • Patricia Pepper

    $50

  • Karin Morrill Barber

    $25

  • Karin Barber Morrill

    $25

  • Saajan, Anjali and Asha

    $50

  • Dave & Anne

    $50

  • Ian and Eric

    $50

  • Tammi

    $25

  • Amy Smith

    $25

  • Molly Stelmack

    $25

  • Lisa M. Sencen

    $25

  • Sanofi Match Gift ID: 85620387

    $75

  • Sanofi Match Gift ID: 85639055

    $50

  • Adam Bartley

    $50

  • Tracy Cullenberg

    $50

  • Sanofi Match Gift ID: 85663789

    $50

  • Sanofi Match Gift ID: 85665095

    $100

  • Norine McArdle

    $25

  • Norine McArdle

    $25

  • Norine McArdle

    $25

  • Tammy Snyder

    $15

  • Tammy Snyder

    $10

  • Mom & Dad

    $100

  • Burtenshaw/Johnson family

    $50

  • Dave Richards

    $20

  • Aldous Family

    $100

  • Sanofi Match Gift ID: 85667919

    $50

  • Best of Luck on Marathon Day!

    $25

  • Shachi Shukla

    $20

  • Matt Barrows

    $25

  • Shawn Santasiere

    $25

  • Marjorie Maddden

    $50

  • Delaney Gardiner

    $100

  • Chris Porrazzo

    $50

  • Walt Longmire

    $25

  • With love from two of your biggest supporters, Makayla and Brieonna

    $50

  • Sean Bennett

    $10

  • Kelsey & Tyler Hartpence

    $10

  • Mary sandys

    $25

  • Allie Porter

    $25

  • Anonymous

    $50

  • Sarah Jones

    $30

  • Alex Payan

    $25

  • Pam Gavin

    $25

  • Pam Gavin

    $25

  • Pam Gavin

    $25

  • Pam Gavin

    $25

  • Dan Chery

    $25

  • Lesley Bennett

    $50

  • Caitlin Kenny

    $25

  • Auntie Jilly

    $50

  • Eric Klotz

    $25

  • Kelly Zimmermann

    $50

  • Tim Williamson

    $100

  • Shauna

    $30

  • Anonymous

    $100

  • NORD Employee Fundraising

    $50

  • NORD Employee Fundraising

    $50

  • NORD Employee Fundraising

    $50

  • NORD Employee Fundraising

    $50

  • Aunt Karen

    $50

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88% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $8,767 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Natalia Stopa

Amount Raised

$1,550

 

310% Raised of $500 Goal

Fundraiser Title

Cassandra Leal

Amount Raised

$1,035

 

207% Raised of $500 Goal

Fundraiser Title

Emily Burke

Amount Raised

$980

 

49% Raised of $2,000 Goal

Fundraiser Title

Ross Martin

Amount Raised

$845

 

169% Raised of $500 Goal

Fundraiser Title

David Andrew

Amount Raised

$835

Fundraiser Title

Melony fedorowicz

Amount Raised

$745

 

149% Raised of $500 Goal

Fundraiser Title

Michael Murphy

Amount Raised

$707

 

71% Raised of $1,000 Goal

Fundraiser Title

Nekeya George

Amount Raised

$680

 

136% Raised of $500 Goal

Donor Comments

Aunt Karen

Aunt Karen

DONATION: $50

You are the best! Have fun! 6 months ago

NORD Employee Fundraising

NORD Employee Fundraising

DONATION: $50

10 months ago

NORD Employee Fundraising

NORD Employee Fundraising

DONATION: $50

10 months ago

NORD Employee Fundraising

NORD Employee Fundraising

DONATION: $50

10 months ago

NORD Employee Fundraising

NORD Employee Fundraising

DONATION: $50

10 months ago

Anonymous

ANONYMOUS

DONATION: $100

10 months ago

Shauna

Shauna

DONATION: $30

10 months ago

Tim Williamson

Tim Williamson

DONATION: $100

10 months ago

Kelly Zimmermann

Kelly Zimmermann

DONATION: $50

You are awesome tal! 10 months ago

Eric Klotz

Eric Klotz

DONATION: $25

Good luck! 10 months ago