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Kai Hoeffner's Fundraiser:

Running for Rare - Hartford Full and Half Marathon

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Kai Hoeffner

THE STORY:

National Organization for Rare Disorders, Inc. wrote -

For the ninth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services.  Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

$100

MONEY RAISED
  • Anonymous

    $100

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The Team: $8,767 TOTAL RAISED SO FAR

Fundraiser Title

Natalia Stopa

Amount Raised

$1,550

 

310% Raised of $500 Goal

Fundraiser Title

Cassandra Leal

Amount Raised

$1,035

 

207% Raised of $500 Goal

Fundraiser Title

Emily Burke

Amount Raised

$980

 

49% Raised of $2,000 Goal

Fundraiser Title

Ross Martin

Amount Raised

$845

 

169% Raised of $500 Goal

Fundraiser Title

David Andrew

Amount Raised

$835

Fundraiser Title

Melony fedorowicz

Amount Raised

$745

 

149% Raised of $500 Goal

Fundraiser Title

Michael Murphy

Amount Raised

$707

 

71% Raised of $1,000 Goal

Fundraiser Title

Nekeya George

Amount Raised

$680

 

136% Raised of $500 Goal

Donor Comments

Anonymous

ANONYMOUS

DONATION: $100

2 years ago