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Amanda Foisy's Fundraiser:

Running for Rare-Boston Marathon 2017

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2 Days to Go!
April 14, 2017

"I can't believe this is happening..." that's what I said to Dan Wilkens when we had .5 Miles to the Finish of the Providence Half Marahon. Boston  See more
Amanda Foisy

THE STORY:

 

Thank you for taking the time to check out my fundraising page!

This is my fourth year as a member of the Running for Rare Team.  Since joining the team in 2014 I have had the oportunity to meet many fierce advocates; build amazing partnerships; and create incredible memories.

This year  I am excited to have the opportunity to run for Luke, my 5 year old partner who is awaiting an accurate diagnosis.  Luke lives with various symptoms of connective tissue disorder; however, his genetic chromosone abnormality is so rare that he is the first reported case in the world.

Luke is a Super Hero, who Loves Super Heroes.  I'm hoping Luke will share some of his Super Powers with me to conquer the 26.2 miles!

Below is a description of the Running for Rare Diseases team's mission:

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services.  Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

 

DONATE

To This Fundraiser

$6,396

MONEY RAISED
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  • Joanne Gagnon

    $100

  • Anonymous

    $10

  • carolyn komosa

    $500

  • Lisa Hazen

    $100

  • Anthony & Lina Foisy

    $100

  • Dan Wilkens

    $100

  • Dana Barrows

    $200

  • Susan Olivo

    $20

  • Rick & Linda Foisy

    $500

  • Dennis and Linda Pronowicz

    $100

  • Ron & Pauline Dunn

    $25

  • Robert Kelliher

    $200

  • IBPO Local 401

    $100

  • Sarah Kaye

     

  • Mary Jane Eustace

     

  • Frank Woods

     

  • Jack & Elizabeth Toner

     

  • Nancy Kiendzior

     

  • Lynn Percy

    $25

  • Tom Boodry

     

  • MISSION: FIT, San Diego

    $250

  • Jon & Linda Mruk

    $50

  • Judy Dubuc

    $150

  • Jacqueline Abramczyk

     

  • Dave Manning

     

  • Kevin and Meredith O'Brien

    $50

  • Andrea Connolly

    $100

  • Jimmy & Dawn Cadigan

    $50

  • Harry and Cindy Kershaw

     

  • Knights of Columbus Council 90

     

  • Russ & Fran Foisy

    $100

  • Elle

    $26.20

  • Don & Cindy Roy

    $30

  • Dr. Jeff & Alana Cullington

    $50

  • Sher Raymond (Dan Wilkens Mom)

    $50

  • Andrea Creedon

    $100

  • Jamie Hannon

    $25

  • Anne Milette

     

  • Nate Sokol

    $25

  • Tom & Jean Connolly

    $100

  • Dion Berte

    $100

  • Dan Cadorette

    $100

  • Barry & Donna Farrell

    $100

  • Debbie Rowe

    $25

  • John & Carol Mazza

    $25

  • Paul & Sue Cadorette

    $25

  • Diane Duval

    $25

  • Fancypants and Joe DeMarzo

    $100

  • Western Builders, Inc., Granby, MA

    $500

  • Patty & Paul Bouthiller

    $25

  • Lynda and Bill

    $100

  • Meg Connolly

    $100

  • Fran Leahy

    $100

  • Sumner & Precious Stone

    $150

  • Liz Persch

    $25

  • April Wesley

    $25

  • Sharon Cuoco

    $100

  • Michael & Linda Yonika

    $25

  • Rosy Metcalfe

    $25

  • Tommy & Sandy Cosenzi

    $50

  • Mary Casale

    $40

  • Tokyo Marine

    $370

  • TMHCC

    $325

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128% Raised of $5,000 Goal

The Team: $75,317 TOTAL RAISED SO FAR

Fundraiser Title

Patrick Jones

Amount Raised

$8,585

 

172% Raised of $5,000 Goal

Fundraiser Title

Becca Bednarz

Amount Raised

$6,585

 

132% Raised of $5,000 Goal

Fundraiser Title

Orion Martin

Amount Raised

$6,522

 

130% Raised of $5,000 Goal

Fundraiser Title

Amanda Foisy

Amount Raised

$6,396

 

128% Raised of $5,000 Goal

Fundraiser Title

Kai Hoeffner

Amount Raised

$5,930

 

119% Raised of $5,000 Goal

Fundraiser Title

Roger Maderia

Amount Raised

$5,610

 

112% Raised of $5,000 Goal

Fundraiser Title

Amie stowe

Amount Raised

$5,575

 

112% Raised of $5,000 Goal

Fundraiser Title

Varavani Dwarki

Amount Raised

$5,345

 

107% Raised of $5,000 Goal

Donor Comments

Mary Casale

Mary Casale

DONATION: $40

4 months ago

Tokyo Marine

Tokyo Marine

DONATION: $370

4 months ago

TMHCC

TMHCC

DONATION: $325

4 months ago

Tommy & Sandy Cosenzi

Tommy & Sandy Cosenzi

DONATION: $50

5 months ago

Rosy Metcalfe

Rosy Metcalfe

DONATION: $25

5 months ago

Sharon Cuoco

Sharon Cuoco

DONATION: $100

5 months ago

Michael & Linda Yonika

Michael & Linda Yonika

DONATION: $25

5 months ago

April Wesley

April Wesley

DONATION: $25

5 months ago

Liz Persch

Liz Persch

DONATION: $25

5 months ago

Sumner & Precious Stone

Sumner & Precious Stone

DONATION: $150

5 months ago