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Becca Bednarz's Fundraiser:

Running for Rare-Boston Marathon 2017

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Becca Bednarz

THE STORY:

National Organization for Rare Disorders, Inc. wrote -

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services.  Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

DONATE

To This Fundraiser

$6,585

MONEY RAISED
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  • Lois D-W

     

  • Leslie Pye

     

  • Dele Atoro

     

  • Joe S

     

  • DiPaolo Family

     

  • Chip and Dale

     

  • Nancy Keefe

     

  • Mom

     

  • Lucia Mandarino

     

  • Debbie Brooks

     

  • Gabre Family

     

  • Anonymous

     

  • Atom Strategic Consulting

     

  • Uncle Jim & Aunt Diana

     

  • Leslie Peoples

     

  • Courtney

     

  • Joe Kane

     

  • Deb and John

     

  • Maris and Jennifer Stegers

     

  • Sadie Wieschhoff

     

  • Liz

     

  • Bob Smyth

     

  • Danielle

     

  • Sean O'Keefe

     

  • Ariel Kule

     

  • Ramona Rosano

     

  • Kelly Madigan

     

  • Bill Ruthrauff

     

  • Tranfield Family

     

  • Uncle Mike, Aunt Carmen, Mike, and Kim

     

  • Aunt Fran

     

  • Christina Jeffrey

     

  • Oliver Parks

     

  • Pat Tackett

     

  • #bossmom

     

  • Aunt Liz

     

  • Anonymous

     

  • CJ & Trooper

     

  • Mike, Michelle, & Alexandra

     

  • Lindsay Hough

     

  • Todd Talarico

     

  • Network for Good

     

  • Jeannie and Joe Rodriguez

     

  • The Barch Family

     

  • Meg Brisson

     

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132% Raised of $5,000 Goal

The Team: $75,317 TOTAL RAISED SO FAR

Fundraiser Title

Patrick Jones

Amount Raised

$8,585

 

172% Raised of $5,000 Goal

Fundraiser Title

Becca Bednarz

Amount Raised

$6,585

 

132% Raised of $5,000 Goal

Fundraiser Title

Orion Martin

Amount Raised

$6,522

 

130% Raised of $5,000 Goal

Fundraiser Title

Amanda Foisy

Amount Raised

$6,396

 

128% Raised of $5,000 Goal

Fundraiser Title

Kai Hoeffner

Amount Raised

$5,930

 

119% Raised of $5,000 Goal

Fundraiser Title

Roger Maderia

Amount Raised

$5,610

 

112% Raised of $5,000 Goal

Fundraiser Title

Amie stowe

Amount Raised

$5,575

 

112% Raised of $5,000 Goal

Fundraiser Title

Varavani Dwarki

Amount Raised

$5,345

 

107% Raised of $5,000 Goal

Donor Comments

Meg Brisson

Meg Brisson

5 months ago

The Barch Family

The Barch Family

We're all so proud of you! 5 months ago

Jeannie and Joe Rodriguez

Jeannie and Joe Rodriguez

5 months ago

Network for Good

Network for Good

5 months ago

Todd Talarico

Todd Talarico

Thank you Becca! We love you! 5 months ago

Lindsay Hough

Lindsay Hough

Go get 'em, g. 5 months ago

Mike, Michelle, & Alexandra

Mike, Michelle, & Alexandra

5 months ago

CJ & Trooper

CJ & Trooper

a step forward for everyone 5 months ago

Anonymous

ANONYMOUS

Run like the wind ! 6 months ago

Aunt Liz

Aunt Liz

6 months ago