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Kai Hoeffner's Fundraiser:

Running for Rare-Boston Marathon 2017

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Kai Hoeffner

THE STORY:

National Organization for Rare Disorders, Inc. wrote -

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services.  Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

$5,930

MONEY RAISED
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  • Anonymous

    $700

  • FMA

    $25

  • Doppelkopf

    $100

  • Kegeln

    $100

  • Familie Wahl

    $50

  • Erik

    $25

  • Timothy Atwood Burke

    $250

  • Yuanyuan Cui

    $25

  • Jack Prior

    $100

  • Genzyme Matching

    $250

  • Genzyme Matching

    $700

  • Anabella Vega

    $50

  • Tom Wentworth

    $50

  • Cinthia Beltrán

    $50

  • Ariel Szabo

    $35

  • Matt song

    $100

  • David Bruton

     

  • Björn Höffner

    $230

  • Genzyme matching

    $150

  • Marco

    $25

  • Sasas alias Catrin E.

    $50

  • The Chavez's

    $50

  • Armin

    $75

  • Ch. Lasinski

    $20

  • Thomas Jostmeier

    $100

  • KGB

    $100

  • Matt Stuber

    $100

  • La familia

    $150

  • Jack's Abby fundraiser event

    $245

  • McGreevy's charity bartending night

    $425

  • Familie Brücker

    $1,000

  • Rare Disease Day

    $500

  • Roxanne Wright

     

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119% Raised of $5,000 Goal

The Team: $75,317 TOTAL RAISED SO FAR

Fundraiser Title

Patrick Jones

Amount Raised

$8,585

 

172% Raised of $5,000 Goal

Fundraiser Title

Becca Bednarz

Amount Raised

$6,585

 

132% Raised of $5,000 Goal

Fundraiser Title

Orion Martin

Amount Raised

$6,522

 

130% Raised of $5,000 Goal

Fundraiser Title

Amanda Foisy

Amount Raised

$6,396

 

128% Raised of $5,000 Goal

Fundraiser Title

Kai Hoeffner

Amount Raised

$5,930

 

119% Raised of $5,000 Goal

Fundraiser Title

Roger Maderia

Amount Raised

$5,610

 

112% Raised of $5,000 Goal

Fundraiser Title

Amie stowe

Amount Raised

$5,575

 

112% Raised of $5,000 Goal

Fundraiser Title

Varavani Dwarki

Amount Raised

$5,345

 

107% Raised of $5,000 Goal

Donor Comments

Roxanne Wright

Roxanne Wright

6 months ago

Rare Disease Day

Rare Disease Day

DONATION: $500

6 months ago

Familie Brücker

Familie Brücker

DONATION: $1,000

6 months ago

McGreevy's charity bartending night

McGreevy's charity bartending night

DONATION: $425

6 months ago

Jack's Abby fundraiser event

Jack's Abby fundraiser event

DONATION: $245

6 months ago

La familia

La familia

DONATION: $150

6 months ago

Matt Stuber

Matt Stuber

DONATION: $100

6 months ago

KGB

KGB

DONATION: $100

6 months ago

Thomas Jostmeier

Thomas Jostmeier

DONATION: $100

6 months ago

Ch. Lasinski

Ch. Lasinski

DONATION: $20

6 months ago