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Nick SantaBarbara's Fundraiser:

Running for Rare-Boston Marathon 2017

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Nick SantaBarbara

THE STORY:

National Organization for Rare Disorders, Inc. wrote -

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services.  Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

DONATE

To This Fundraiser

$5,000

MONEY RAISED
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  • Dona and Tom Santa Barbara

    $100

  • The Pardo's

    $100

  • Paul Nicoloro

    $250

  • Joey & Marissa

    $150

  • Thomas Santa Barbara

    $100

  • John and Christina Moore

    $100

  • Mr.Fit

    $25

  • Matt & Laura Antonelli

    $100

  • Lauren and Scott Reese

    $100

  • Carol Garber

     

  • Sanaz

    $50

  • Remi and Michael Dansinger

    $50

  • Mom

    $250

  • Lauren and Rakesh

    $150

  • Johnny Nicoloro

    $50

  • Sara DeIeso

     

  • Tom Gunnoud

    $100

  • Alison & Nuno

     

  • Jada and Victor Luna

    $100

  • The Dubucs

    $35

  • CHRIS and JACK ANTONELLI

    $50

  • The Herrmann Family

     

  • Anonymous

     

  • Barbara Filardo

    $50

  • Carl deieso

    $100

  • Jordan LaBrec

    $20

  • Joey

    $100

  • Matt Vaughn

    $75

  • Mark Louie

    $25

  • Donna Saucier

    $25

  • Stephanie, Brian, Sean and Jack

    $50

  • Amy Siwik

     

  • Courtney Brooks

    $25

  • Sherilyn Chiappone

    $50

  • Chad & Jen Chiappone

    $50

  • Margaret Guinn

    $50

  • Julia Feldman_go get em Nick!

    $25

  • JD Budreau

    $100

  • Janice Chiappone

    $250

  • Pat & Connor Antonellis

    $200

  • Paul & Janice Nicoloro

    $1,610

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100% Raised of $5,000 Goal

The Team: $75,317 TOTAL RAISED SO FAR

Fundraiser Title

Patrick Jones

Amount Raised

$8,585

 

172% Raised of $5,000 Goal

Fundraiser Title

Becca Bednarz

Amount Raised

$6,585

 

132% Raised of $5,000 Goal

Fundraiser Title

Orion Martin

Amount Raised

$6,522

 

130% Raised of $5,000 Goal

Fundraiser Title

Amanda Foisy

Amount Raised

$6,396

 

128% Raised of $5,000 Goal

Fundraiser Title

Kai Hoeffner

Amount Raised

$5,930

 

119% Raised of $5,000 Goal

Fundraiser Title

Roger Maderia

Amount Raised

$5,610

 

112% Raised of $5,000 Goal

Fundraiser Title

Amie stowe

Amount Raised

$5,575

 

112% Raised of $5,000 Goal

Fundraiser Title

Varavani Dwarki

Amount Raised

$5,345

 

107% Raised of $5,000 Goal

Donor Comments

Paul & Janice Nicoloro

Paul & Janice Nicoloro

DONATION: $1,610

Tribute to Janice Chiappone 4 months ago

Pat & Connor Antonellis

Pat & Connor Antonellis

DONATION: $200

Janice chiappone 5 months ago

Janice Chiappone

Janice Chiappone

DONATION: $250

Good luck Nick! Thank you for Running for Rare! We love you! 5 months ago

JD Budreau

JD Budreau

DONATION: $100

5 months ago

Julia Feldman_go get em Nick!

Julia Feldman_go get em Nick!

DONATION: $25

5 months ago

Margaret Guinn

Margaret Guinn

DONATION: $50

In honor of Aislynn 5 months ago

Chad & Jen Chiappone

Chad & Jen Chiappone

DONATION: $50

Best of luck!! 5 months ago

Sherilyn Chiappone

Sherilyn Chiappone

DONATION: $50

5 months ago

Courtney Brooks

Courtney Brooks

DONATION: $25

5 months ago

Amy Siwik

Amy Siwik

Good luck Nick! Have fun & you're going to do great! 5 months ago