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Orion Martin's Fundraiser:

Running for Rare-Boston Marathon 2017

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Orion Martin

THE STORY:

National Organization for Rare Disorders, Inc. wrote -

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services.  Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

$6,522

MONEY RAISED
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  • Hannah diCicco

    $26.20

  • Claudia & Ed Smith

    $50

  • Barbara Hennessey

    $50

  • Ephrem and Marisa (Dolan) Paraschak

    $50

  • The George Family

     

  • Rich and Laurie Cisto

    $100

  • Hilary Bennett & Dennis di Cicco

    $50

  • John and Ellen Martin

    $500

  • Joe Buzun

    $100

  • Kerry Dolan

    $200

  • Marianne & Fran Buzun

    $100

  • John Martin

    $500

  • Aunt Jane & Uncle Steve

    $100

  • Barbara Martin & Ginnie Gude

    $100

  • Barbara Sirvis

    $50

  • Rayleen and Jane, friends of Aunt Barbara

     

  • Sandie Bock

     

  • Richie and Kristen Malagodi

    $100

  • KIMBERLEY VAN HORN

    $25

  • The Trites Family

    $25

  • Jessica Webb

    $40

  • Krista Sherburne

    $25

  • Driscoll Family

    $75

  • Alyson

    $50

  • Aaron & Tiffany Petrillo

    $50

  • Alex and Andrea Hatziyannis

    $25

  • D and J Breslin

    $150

  • The Kelly Auto Group

    $250

  • Christine Kowalczyk

    $25

  • Amy Drouillard

    $26.20

  • Chris Parisi

    $25

  • Carol P

    $50

  • Jessica Maggio

     

  • Ann Kowalczyk

    $50

  • Adrea (Indisputably Orion's Favorite Cousin)

    $40

  • Steven (Adrea's lying)

    $35

  • Jesus Christ

    $25

  • Rich and Barbara Malagodi

    $50

  • Jimmy the Cooler

    $50

  • Joe and Allye Mittica

     

  • Justin Motta

    $100

  • John Z

    $50

  • Sonya Galvan

    $50

  • Anthony Imperato

     

  • Steve Lordan

    $50

  • Lily allwood

    $25

  • Ian and Beth

    $50

  • Janice and Butch Stearns

    $25

  • Laurie Nemec

    $50

  • Blaine & Emily

    $100

  • Peter and Annette Astphan

    $25

  • Jason Hartman

    $125

  • Jay Moniz

    $50

  • Scott Kelly

    $50

  • Felix Dejesus

    $100

  • Christopher Colón

    $100

  • Lindsay

    $75

  • Eric Batchelder

    $50

  • 50

    $50

  • McGreevy's charity bartending night

    $425

  • Richie Walsh

    $50

  • F.W.Webb High Purity Process Division

    $50

  • Lauren Breslin and Shawn Casey

    $100

  • Kim Breslin

    $200

  • Blast off

    $50

  • John Ebrecht

    $20

  • Rare Disease Day

    $500

  • Ron and Abbey

    $25

  • Gary J Cislak

    $200

  • A Faldetta

    $50

  • Kurt Budnik

    $60

  • Chris Heeley

    $100

  • B Breslin

    $20

  • Anonymous

     

  • Boyle, McGraw, Bryant, and Galego family

    $120

  • Gary and Barbara North

    $25

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130% Raised of $5,000 Goal

The Team: $75,317 TOTAL RAISED SO FAR

Fundraiser Title

Patrick Jones

Amount Raised

$8,585

 

172% Raised of $5,000 Goal

Fundraiser Title

Becca Bednarz

Amount Raised

$6,585

 

132% Raised of $5,000 Goal

Fundraiser Title

Orion Martin

Amount Raised

$6,522

 

130% Raised of $5,000 Goal

Fundraiser Title

Amanda Foisy

Amount Raised

$6,396

 

128% Raised of $5,000 Goal

Fundraiser Title

Kai Hoeffner

Amount Raised

$5,930

 

119% Raised of $5,000 Goal

Fundraiser Title

Roger Maderia

Amount Raised

$5,610

 

112% Raised of $5,000 Goal

Fundraiser Title

Amie stowe

Amount Raised

$5,575

 

112% Raised of $5,000 Goal

Fundraiser Title

Varavani Dwarki

Amount Raised

$5,345

 

107% Raised of $5,000 Goal

Donor Comments

Gary and Barbara North

Gary and Barbara North

DONATION: $25

6 months ago

Boyle, McGraw, Bryant, and Galego family

Boyle, McGraw, Bryant, and Galego family

DONATION: $120

6 months ago

Anonymous

ANONYMOUS

Go Orion, go! 6 months ago

B Breslin

B Breslin

DONATION: $20

6 months ago

Chris Heeley

Chris Heeley

DONATION: $100

6 months ago

Kurt Budnik

Kurt Budnik

DONATION: $60

6 months ago

A Faldetta

A Faldetta

DONATION: $50

Go Orion !! 6 months ago

Gary J Cislak

Gary J Cislak

DONATION: $200

To all those fighting the fight.... 6 months ago

Ron and Abbey

Ron and Abbey

DONATION: $25

Good luck!! 6 months ago

Rare Disease Day

Rare Disease Day

DONATION: $500

6 months ago