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Patrick Jones' Fundraiser:

Running for Rare-Boston Marathon 2017

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Patrick's Photo
Patrick's Photo
Patrick's Photo
Patrick Jones

THE STORY:

National Organization for Rare Disorders, Inc. wrote -

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services.  Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

$8,585

MONEY RAISED
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  • Shae Fitzpatrick

     

  • J Lillie

     

  • bruno mendez

    $50

  • Gary Asmussen

    $50

  • George Brennan

    $100

  • bree

    $50

  • Bing Wang

    $50

  • Kristen Randall

    $50

  • John and Carole

    $50

  • Ryan Arsenault

    $100

  • Diane and Billy Fitzpatrick

     

  • Malika Fezoui

    $100

  • Donghui Wang

    $50

  • Leslie

    $100

  • Praveen Bahadduri and Family

    $50

  • Nora Schmitt

    $25

  • John Leonard

    $100

  • helen klodnitsky

    $50

  • Anonymous

    $50

  • Joe and Julie

    $50

  • Pitts Family

    $50

  • Kathy Jones

     

  • Robert Hunter

    $100

  • jill gregory

    $100

  • Ryan, Lacey, and Will

    $150

  • Lindsay Q

    $50

  • Oxana Beskrovnaya

    $50

  • Takako

    $50

  • Alexander Brezzani

    $100

  • Scott & Kara

    $100

  • Kaleigh & Chris

     

  • Anonymous

     

  • Sanofi-Genzyme Corporate Match

    $1,000

  • Anonymous

    $100

  • Jamie Flaherty

    $50

  • Melissa Chambers

    $50

  • Nick and Christine

     

  • Rod Moreland

    $50

  • John Marshall

    $50

  • McGreevy's charity bartending night

    $425

  • David Harris

    $50

  • Nina, Bella, and Brian Tocci

    $50

  • Jennifer Nietupski

    $50

  • Dan Sweeney

    $100

  • Rare Disease Day

    $500

  • Sanofi-Genzyme Corporate Match

    $500

  • Anonymous

     

  • Jay Buckingham

    $25

  • Anonymous

    $50

  • Anonymous

     

  • Rich Brennan

    $50

  • Anonymous

    $50

  • Cindy Zisson

    $50

  • Alexei

    $50

  • Hyejung

    $50

  • Andrew and Erica McNaught

    $25

  • Anonymous

    $25

  • Meghan Brundage

    $50

  • Dominic Cammarata

    $50

  • Shannon L.

     

  • Jennifer Hess

     

  • Penny, Ella, Chris and Laura

    $1,000

  • Andrew Giunta

    $50

  • Julie MacDonald

     

  • Ron Bruntz and Caroline Buchanan

     

  • Mary-Joan and Mark

    $50

  • Carol Dinardo

    $50

  • Yan He

    $50

  • Sanofi-Genzyme Corporate Match

     

  • David Aldous

    $50

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172% Raised of $5,000 Goal

The Team: $75,317 TOTAL RAISED SO FAR

Fundraiser Title

Patrick Jones

Amount Raised

$8,585

 

172% Raised of $5,000 Goal

Fundraiser Title

Becca Bednarz

Amount Raised

$6,585

 

132% Raised of $5,000 Goal

Fundraiser Title

Orion Martin

Amount Raised

$6,522

 

130% Raised of $5,000 Goal

Fundraiser Title

Amanda Foisy

Amount Raised

$6,396

 

128% Raised of $5,000 Goal

Fundraiser Title

Kai Hoeffner

Amount Raised

$5,930

 

119% Raised of $5,000 Goal

Fundraiser Title

Roger Maderia

Amount Raised

$5,610

 

112% Raised of $5,000 Goal

Fundraiser Title

Amie stowe

Amount Raised

$5,575

 

112% Raised of $5,000 Goal

Fundraiser Title

Varavani Dwarki

Amount Raised

$5,345

 

107% Raised of $5,000 Goal

Donor Comments

David Aldous

David Aldous

DONATION: $50

6 months ago

Sanofi-Genzyme Corporate Match

Sanofi-Genzyme Corporate Match

6 months ago

Yan He

Yan He

DONATION: $50

for Prader-Willie Syndrome 6 months ago

Carol Dinardo

Carol Dinardo

DONATION: $50

6 months ago

Mary-Joan and Mark

Mary-Joan and Mark

DONATION: $50

Thank you for running, for Ella! 6 months ago

Julie MacDonald

Julie MacDonald

6 months ago

Andrew Giunta

Andrew Giunta

DONATION: $50

6 months ago

Penny, Ella, Chris and Laura

Penny, Ella, Chris and Laura

DONATION: $1,000

Thanks for running , with â 6 months ago

Jennifer Hess

Jennifer Hess

6 months ago