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Roger Maderia's Fundraiser:

Running for Rare-Boston Marathon 2017

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Roger Maderia

THE STORY:

National Organization for Rare Disorders, Inc. wrote -

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services.  Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

DONATE

To This Fundraiser

$5,610

MONEY RAISED
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  • Jason Steiner

    $50

  • Judy DeLorey

    $25

  • Donna and Michael Duffy

    $50

  • Shauna

    $25

  • Gavin Family

    $100

  • Jill Morello

    $75

  • Kristin Rapp

    $25

  • Anonymous

     

  • Beth and Joe Holahan

    $50

  • Beth SOnger

    $50

  • Casale Family

    $25

  • Jay & Sheila Chabot

    $50

  • George & Kathy Barris

    $100

  • The Delizo Family

    $25

  • Aprea Custom Creations LLC

    $200

  • Bill McGoldrick

    $25

  • Aunt Gloria

    $25

  • Lisa Dalto

    $25

  • Lisa Dalto

    $50

  • Jill & Janet Morello

    $100

  • Judith & Ray DeLorey

    $50

  • Scott and Tanya Allen

    $50

  • Rob and Christine Street

    $50

  • Michael & Valerie Mason

    $50

  • Jason Steiner

     

  • Heather & Mike Carter

    $50

  • Bob & Sheryl Curtin

    $50

  • Devon Danielson

    $200

  • Frank Deer

    $200

  • Ann Rita

    $25

  • The Clifford Family

    $50

  • Kate & Jamey +2

    $100

  • Melody, Mylo, Felix & Oscar Morello

    $100

  • The Quinn's

    $50

  • GLSS

    $100

  • Sperou Family

    $125

  • Christine and Robert Street

    $50

  • The Chabots

    $50

  • Phillip Maderia

     

  • The Mooneys

    $360

  • Walter & Leslie Harris

    $100

  • Anonymous

    $2,500

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112% Raised of $5,000 Goal

The Team: $75,317 TOTAL RAISED SO FAR

Fundraiser Title

Patrick Jones

Amount Raised

$8,585

 

172% Raised of $5,000 Goal

Fundraiser Title

Becca Bednarz

Amount Raised

$6,585

 

132% Raised of $5,000 Goal

Fundraiser Title

Orion Martin

Amount Raised

$6,522

 

130% Raised of $5,000 Goal

Fundraiser Title

Amanda Foisy

Amount Raised

$6,396

 

128% Raised of $5,000 Goal

Fundraiser Title

Kai Hoeffner

Amount Raised

$5,930

 

119% Raised of $5,000 Goal

Fundraiser Title

Roger Maderia

Amount Raised

$5,610

 

112% Raised of $5,000 Goal

Fundraiser Title

Amie stowe

Amount Raised

$5,575

 

112% Raised of $5,000 Goal

Fundraiser Title

Varavani Dwarki

Amount Raised

$5,345

 

107% Raised of $5,000 Goal

Donor Comments

Anonymous

ANONYMOUS

DONATION: $2,500

6 months ago

Walter & Leslie Harris

Walter & Leslie Harris

DONATION: $100

LCR Tournament - Go Roger, Enjoy the day, it goes by so fast...all 26.2 6 months ago

The Mooneys

The Mooneys

DONATION: $360

LCR 6 months ago

Phillip Maderia

Phillip Maderia

I'm proud of you!! 6 months ago

The Chabots

The Chabots

DONATION: $50

6 months ago

Christine and Robert Street

Christine and Robert Street

DONATION: $50

6 months ago

Sperou Family

Sperou Family

DONATION: $125

6 months ago

GLSS

GLSS

DONATION: $100

6 months ago

The Quinn's

The Quinn's

DONATION: $50

Giddy up! We â 6 months ago

Melody, Mylo, Felix & Oscar Morello

Melody, Mylo, Felix & Oscar Morello

DONATION: $100

6 months ago