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Sarah Yang's Fundraiser:

Running for Rare-Boston Marathon 2017

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Sarah Yang

THE STORY:

National Organization for Rare Disorders, Inc. wrote -

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services.  Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

$5,000

MONEY RAISED
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  • The Maha's

    $500

  • Erica Thiel, 'Team MPS'!

    $25

  • Perry Girls

    $25

  • Pat Dell 'Italia

    $50

  • Mom and Dad

    $100

  • Sarah Ann

    $50

  • Jackie Kallstrand

    $10

  • Martha Stapels

    $50

  • Anna Banna, Kim and Mike

    $25

  • Mihalak family

    $50

  • The Mighty Knights

     

  • Roopa Nash

    $25

  • Lisa Witzler

     

  • Danielle Tropeano

    $100

  • Mark & Patty Prian

    $50

  • Amanda Farr

    $50

  • Janet

    $100

  • Darlene Green

    $50

  • Martha Stapels

    $50

  • Lyla Rotter

    $25

  • Lisa Booher

    $100

  • Angelo and Debbie Della Manna

    $100

  • Kim Joyce

    $50

  • Ben and Ashley

     

  • Elise Kohnen

     

  • Chris, Patty and Jack Cobb

    $100

  • Melissa Dawes

    $25

  • Kelly and Holly Hollis

     

  • Amanda Monty

    $100

  • Nico Meyering

     

  • Amy Windham

    $50

  • Madi Yang

    $2,785

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100% Raised of $5,000 Goal

The Team: $75,317 TOTAL RAISED SO FAR

Fundraiser Title

Patrick Jones

Amount Raised

$8,585

 

172% Raised of $5,000 Goal

Fundraiser Title

Becca Bednarz

Amount Raised

$6,585

 

132% Raised of $5,000 Goal

Fundraiser Title

Orion Martin

Amount Raised

$6,522

 

130% Raised of $5,000 Goal

Fundraiser Title

Amanda Foisy

Amount Raised

$6,396

 

128% Raised of $5,000 Goal

Fundraiser Title

Kai Hoeffner

Amount Raised

$5,930

 

119% Raised of $5,000 Goal

Fundraiser Title

Roger Maderia

Amount Raised

$5,610

 

112% Raised of $5,000 Goal

Fundraiser Title

Name Unknown

Amount Raised

$5,575

 

112% Raised of $5,000 Goal

Fundraiser Title

Varavani Dwarki

Amount Raised

$5,345

 

107% Raised of $5,000 Goal

Donor Comments

Madi Yang

Madi Yang

DONATION: $2,785

11 months ago

Amy Windham

Amy Windham

DONATION: $50

1 year ago

Nico Meyering

Nico Meyering

Proud to support these efforts! 1 year ago

Amanda Monty

Amanda Monty

DONATION: $100

1 year ago

Kelly and Holly Hollis

Kelly and Holly Hollis

Proud of you Sarah! 1 year ago

Melissa Dawes

Melissa Dawes

DONATION: $25

1 year ago

Chris, Patty and Jack Cobb

Chris, Patty and Jack Cobb

DONATION: $100

Supporting 'Miles for Madi'. Go Sarah Go! 1 year ago

Elise Kohnen

Elise Kohnen

1 year ago

Ben and Ashley

Ben and Ashley

Myles Phillips 1 year ago

Kim Joyce

Kim Joyce

DONATION: $50

In memory of Lauren Savino 1 year ago