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National Organization for Rare Disorders, Inc.'s Fundraiser:

Running for Rare—Skechers Performance Los Angeles Marathon

National Organization for Rare Disorders, Inc.'s Photo

BENEFITING: National Organization for Rare Disorders, Inc.

EVENT: LA Marathon 2017

EVENT DATE: Mar 19, 2017

THE STORY:

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services.  Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For nine consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

DONATE

To This Fundraiser

$13,068

MONEY RAISED
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  • Frances Schneider

     

  • Elaine O'Gorman

     

  • Marcia & Tom McGee

     

  • Dick Murray

     

  • Whitney Chareun

    $10

  • Friend of your dad

     

  • Kevin McPartland

     

  • Joan Callahan

     

  • Justin Tran

    $150

  • Justin Tran

    $50

  • Diana Le

    $10

  • Tony Arrigo

     

  • Sally Huston

    $25

  • Rachita Sumbria

    $25

  • Kristen Felthousen

    $25

  • Bailey Clem

    $20

  • Matthew Callahan

     

  • Rose Nehring

     

  • Anonymous

    $50

  • Gail, your Dad's finest former employee

     

  • Sanofi Match

    $150

  • brad zimmerman

     

  • Brandon

     

  • Matt Brewster

     

  • Chris Baugh

     

  • Mark Hudis

     

  • Michelle Dunn

     

  • Rob

     

  • Caryn Tayeh

     

  • Chelsey Lora

     

  • Brian Hubble

     

  • Maria Bissell

     

  • Jeff

     

  • Tamara and Brian Dow

     

  • Michelle

     

  • Squiggly Biggins and N. Fred Morris

     

  • Jordan Rosenberg

     

  • Tian Jun Gu

     

  • Meghan Handler

     

  • Melissa Owen

     

  • Shrihari Sathe

     

  • Andrew Daar

     

  • tara mcsherry

     

  • Amy Pijanowski

     

  • Miriam

     

  • Stuart Ruston

     

  • Sherman Li

     

  • Jackson Lanzing

     

  • Nic

     

  • Mitchell Akselrad

     

  • Aunt Mimi

     

  • Gerald

     

  • Aaron Lipsett

     

  • Ben and Mandy

     

  • Robert Wolfe

     

  • Jackie Laine

     

  • Benjamin Klein

     

  • Rick

     

  • Amanda C Lee

     

  • Daniel A

     

  • Eric Stolze

     

  • R T

    $45

  • R T

    $45

  • Eric Dickinson

     

  • Matt Shichtman

     

  • Rachel Chervin

     

  • Trudy Yee

     

  • Malcolm Gray

     

  • Adam & Kaitlin

     

  • Derek DeLaRosa

     

  • Greg Wachtenheim

     

  • Brian Rodenbeck

     

  • Jason Tracey

     

  • Brett

     

  • Nicki Holcomb

     

  • Aubrie Nestor

     

  • Caroline McSherry

     

  • Ben Waldorf

     

  • Katie & Byron

     

  • Anonymous

     

  • Carolyn Ciplet

     

  • Sondra Watanabe

     

  • Alex sohn

     

  • Anonymous

     

  • Justin Campbell

     

  • kaelin/russel campbell/smith

     

  • Janne La

    $10

  • Anderson

    $25

  • Team Canada

     

  • Ann and Greg

     

  • Vanessa Dawson

    $25

  • Grace Credo

     

  • Michael Kuhn

     

  • Katherine Spada

     

  • Anonymous

     

  • Marty

     

  • Jerry Claeys

     

  • Rashmi and Praveen Bahadduri, via HPHC mini grant.

    $500

  • Cassandra Leal

     

  • Cassandra Leal

     

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87% Raised of $15,000 Goal

Fundraise for this Campaign

The Team: $13,068 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sean Bennett

Amount Raised

$7,665

 

767% Raised of $1,000 Goal

Fundraiser Title

Martha Stapels

Amount Raised

$2,227

 

223% Raised of $1,000 Goal

Fundraiser Title

Tara Sparks

Amount Raised

$1,156

Fundraiser Title

Rena Baek

Amount Raised

$1,050

 

105% Raised of $1,000 Goal

Fundraiser Title

Annie Pham

Amount Raised

$370

Fundraiser Title

Anderson Van

Amount Raised

$310

 

31% Raised of $1,000 Goal

Fundraiser Title

Caroline Kim

Amount Raised

$170

 

17% Raised of $1,000 Goal

Fundraiser Title

MrMarcus Jackson

Amount Raised

$95

Donor Comments

Cassandra Leal

Cassandra Leal

1 year ago

Cassandra Leal

Cassandra Leal

1 year ago

Rashmi and Praveen Bahadduri, via HPHC mini grant.

Rashmi and Praveen Bahadduri, via HPHC mini grant.

DONATION: $500

1 year ago

Jerry Claeys

Jerry Claeys

Good luck, Sean. This is a great cause. 1 year ago

Marty

Marty

Get it! 1 year ago

Anonymous

ANONYMOUS

1 year ago

Katherine Spada

Katherine Spada

1 year ago

Michael Kuhn

Michael Kuhn

1 year ago

Grace Credo

Grace Credo

1 year ago

Vanessa Dawson

Vanessa Dawson

DONATION: $25

In memory of my nephew, baby Rocky 1 year ago