Running for CDH Awareness Udate
May 19, 2016
I will be running in the San Francisco Half Marathon on July 31st. I've run this race many times but this time it will mean so much more. I will be running for CDH awareness (Congenital Diaphragmatic Hernia). This cause is very close to my heart because my amazing baby girl is a survivor. She had major surgery to repair her diaphragm at just 3 days old and we were able to bring her home weeks later. She is now a healthy, thriving 6 month old who will go on on to live a normal life, we had the absolute best case scenario.
However, many families are not as fortunate and their stories are very different. Only 50% of all babies diagnosed will even survive. Many that do survive will have lifelong health problems. We will forever be grateful to the surgical team at UCSF and our baby girl's feisty spirit. I always think of how easily our outcome could have gone the other way. It's because we were so blessed that I feel the need to give back in some small way. I will be running on behalf of all the babies in the NICU right now fighting for their lives and their terrified parents. There is no worse feeling than having your baby in the hospital, not being able to hold them or bring them home with you.
CDH occurs as frequently has Spina Bifida and Cystic Fibrosis, yet there is no known cause and very little research being done. I have partnered with the Nayeli Faith Foundation to raise funds. The funds raised assists families facing a CDH diagnosis, families with a CDH child in the hospital, and families who have lost a child to CDH. This assistance includes lodging, transportation, food and gas cards, funeral expenses, etc. They also provide funding for research at the University of California/San Francisco that specialize in treating this condition.
Thank you in advance for your support!
For more information on CDH: http://fetus.ucsf.edu/cdh/