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Aimee Bryan's Fundraiser:

Running for Ben

Aimee's Photo
Aimee's Photo

BENEFITING: Dravet.org

EVENT: Top of Utah Marathon

Aimee Bryan

THE STORY:

Almost a year ago, my then 2 year old son, was diagnosed with Dravet Syndrome (pronounced: Drah-vay).  It is a severe form of epilepsy that will not be outgrown.  Ben has tried many medications and treatments with little or no improvement.  Currently, Ben has 100 + little seizures a day and multiple larger ones each week.  He wears a helmet to protect himself from his constant falls.  Ben has developmental issues as well which is common among kids with DS .  Because he doesn't really speak we are working on teaching him sign language.  Ben has a delightful sense of humor and a loving personality.  We hope for a bright future for Ben. Please consider donating to Running for Ben to raise money for research so we can find a treatment or cure for all kids with Dravet.

DONATE

To This Fundraiser

$1,275

MONEY RAISED
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  • angie

    $25

  • Maureen Gray

    $25

  • Dawn Ronningen

     

  • Carla Bergholm

    $25

  • Anonymous

    $10

  • Trina n Blake

    $25

  • Ben's Buddy

    $25

  • chrisg

    $25

  • Anonymous

     

  • Anonymous

     

  • Sherrill

    $50

  • Anonymous

    $50

  • Anonymous

    $50

  • Anonymous

    $50

  • Anonymous

    $50

  • Anonymous

     

  • Anonymous

     

  • From "O"

    $50

  • Anonymous

    $50

  • Anonymous

    $50

  • Jake and Sadie Shepherd (Former Seminary Students)

    $20

  • Anonymous

    $50

  • Anonymous

    $50

  • Anonymous

    $50

  • Carole Caminiti

    $20

  • Anonymous

    $50

  • Anonymous

    $50

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Fundraise for this Campaign

The Team: $1,275 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Anonymous

ANONYMOUS

DONATION: $50

Bless his little heart! 3 years ago

Anonymous

ANONYMOUS

DONATION: $50

3 years ago

Carole Caminiti

Carole Caminiti

DONATION: $20

4 years ago

Anonymous

ANONYMOUS

DONATION: $50

In memory of Susan W., who just lost her battle with cancer. 4 years ago

Anonymous

ANONYMOUS

DONATION: $50

4 years ago

Anonymous

ANONYMOUS

DONATION: $50

Yee Haw!! 4 years ago

Jake and Sadie Shepherd (Former Seminary Students)

Jake and Sadie Shepherd (Former Seminary Students)

DONATION: $20

Your little boy is adorable! We hope things continue to get better!!! --- Love the Shepherd's 4 years ago

Anonymous

ANONYMOUS

DONATION: $50

4 years ago

Anonymous

ANONYMOUS

DONATION: $50

4 years ago

From

From "O"

DONATION: $50

4 years ago