EVENT DATE: Oct 26, 2014
Our friends' son Ethan Klancnik was diagnosed with Tay-Sachs and passed away in January at only 19 months old. Tay-Sachs is fatal and has no cure.
I'm raising money for their organization Tay-Sachs Awareness and Prevention to help other at-risk families avoid the tragedy of this disease. I will be running the Marine Corps Marathon on October 26 and hope to raise $100 for every mile I will run.
Learn more about TSAPO here: http://www.tsapo.org/
Learn more about Ethan and the Klancniks with this lovely post from a photographer friend of theirs, Mary Kate McKenna: http://mksblog.com/rare-disease-day-2014-honoring-ethan/