Rici Reid via Crowdrise
December 08, 2010
BENEFITING: SOPHIAS CURE INC
EVENT DATE: Dec 12, 2010
Don't know what SMA is? Here are some facts:
SMA is the #1 genetic killer of young children.
SMA is estimated to occur in nearly 1 out of every 6,000 births.
1 in every 40 people, or nearly 10 million Americans, UNKNOWINGLY carries the gene responsible for SMA. Few have any known family history.
SMA is a pan-ethnic disease and does not discriminate based on race, ethnicity, or gender.
There is currently no treatment and no cure, but the National Institutes of Health (NIH) selected SMA as the disease closest to treatment of more than 600 neurological disorders.
Researchers estimate that a viable treatment and/or cure is attainable in as little as 5 years – IF provided adequate resources.
The American College of Medical Genetics recommends that SMA carrier testing be made available to ALL couples planning a family, regardless of ethnicity or family history.