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Rita Marta's Fundraiser:

Running for HIBM in China

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Rita Marta

THE STORY:

At the age of 34, I am almost 9 years into the disease, nevertheless, I can miraculously still walk, albeit with the aid of leg braces and two canes. Via the following link you can read my personal story. It was the first time I wrote about what it is like to become disabled after growing up as an active athlete and dance instructor: http://www.hibm.org/arm/community:cara_yar_khan:cara_yar_khan

To date there is no approved treatment or cure for HIBM. With only 1000 known patients around the world it is challenging to garner support and mobilize resources to fund a cure.The number of patients with HIBM around the world is expected to be significantly higher. Unfortunately few medical practitioners are aware of HIBM and most patients, like myself, were misdiagnosed.

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