BENEFITING: CURE CMD
Izzie is an amazing girl who deserves a cure. I will be running in the Rock N Roll half marathon this October and will do all I can to reach my goal of raising $500.00 to help raise money to help researchers find a cure for her. I will also be running with a purple wig to raise awareness and funds for the "Izzie Challenge". The "Izzie Challenge" is a challenge to raise awareness and funds for a rare type of Muscular Dystrophy, Ullrich Congenital Muscular Dystrophy. Izzie was born with it and it so rare that it affects 1 in 1 million people. Affected individuals show muscle weakness soon after birth. The muscle weakness is typically severe, and most affected people are not able to walk unassisted. Individuals with this condition develop joint stiffness (contractures) in their knees and elbows that can restrict movement. They also have an unusually large range of joint movement (hypermobility) in their wrists and ankles. The respiratory muscles may also be weakened, requiring people to use a machine to help them breathe at night (mechanical ventilation). The challenge itself is to dye any part of your hair purple, as it is her most favorite color and/or donate to curecmd.org, click donations and towards the bottom there is a drop down box that asks where you would like your funds to be designated toward, please choose collagen VI research. Why collagen VI research, that's the more medical term for Ullrich Congenital Muscular Dystrophy.