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Amanda Clark's Fundraiser:

Running for Izzie

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BENEFITING: CURE CMD

Amanda Clark

THE STORY:

Izzie is an amazing girl who deserves a cure. I will be running in the Rock N Roll half marathon this October and will do all I can to reach my goal of raising $500.00 to help raise money to help researchers find a cure for her. I will also be running with a purple wig to raise awareness and funds for the "Izzie Challenge". The "Izzie Challenge" is a challenge to raise awareness and funds for a rare type of Muscular Dystrophy, Ullrich Congenital Muscular Dystrophy. Izzie was born with it and it so rare that it affects 1 in 1 million people. Affected individuals show muscle weakness soon after birth. The muscle weakness is typically severe, and most affected people are not able to walk unassisted. Individuals with this condition develop joint stiffness (contractures) in their knees and elbows that can restrict movement. They also have an unusually large range of joint movement (hypermobility) in their wrists and ankles. The respiratory muscles may also be weakened, requiring people to use a machine to help them breathe at night (mechanical ventilation). The challenge itself is to dye any part of your hair purple, as it is her most favorite color and/or donate to curecmd.org, click donations and towards the bottom there is a drop down box that asks where you would like your funds to be designated toward, please choose collagen VI research. Why collagen VI research, that's the more medical term for Ullrich Congenital Muscular Dystrophy.

DONATE

To This Fundraiser

$570

MONEY RAISED
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  • Marisa Lewis

    $20

  • Heather

    $10

  • Kristin Witterschein

    $10

  • Kim

    $10

  • Ashley Emala

    $50

  • Aunt Lisa

    $100

  • Jen & Kevin Danenberg

     

  • Veronica Calhoun

    $10

  • melissa sydow

    $10

  • K. Franklin

     

  • Erin & Mel Chan

     

  • Kathryn Fogliano

    $50

  • Lambert Family

    $25

  • Ryan Pamplin

    $13.10

  • Gretchen

     

  • Beth Pulawski

    $20

  • Lindsay Clark and Brian Van Wye

    $50

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114% Raised of $500 Goal

Fundraise for this Campaign

The Team: $570 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Lindsay Clark and Brian Van Wye

Lindsay Clark and Brian Van Wye

DONATION: $50

2 years ago

Beth Pulawski

Beth Pulawski

DONATION: $20

2 years ago

Gretchen

Gretchen

You will do it! 2 years ago

Ryan Pamplin

Ryan Pamplin

DONATION: $13.10

Keep up the great work!!!!! 2 years ago

Lambert Family

Lambert Family

DONATION: $25

In memory of our cousin Glenn Garrett. 2 years ago

Kathryn Fogliano

Kathryn Fogliano

DONATION: $50

2 years ago

Erin & Mel Chan

Erin & Mel Chan

2 years ago

K. Franklin

K. Franklin

You're an inspiration! 2 years ago

melissa sydow

melissa sydow

DONATION: $10

2 years ago

Veronica Calhoun

Veronica Calhoun

DONATION: $10

2 years ago